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Autism – understanding and managing anxiety

We all experience stress during our daily lives but for many autistic people the experience of stress can feel very intense and cause severe difficulties.

stress

Like many young people with autism, my son has been experiencing anxiety related to an overly-literal understanding of what it means to follow school rules and when he is faced with an unplanned change both inside and outside the school setting. He has a very narrow view of what it means to be in the correct uniform or be on time for lessons or appointments. When he is feeling stressed he will rock on his feet, pace the floor and ask repetitive questions. In these situations, he finds it difficult to respond to any reassurance.

Together with his Speech and Language therapist  (‘SLT’) and Occupational therapist  (‘OT’) we have been using some strategies to help him. We have taught him that the concept of feeling overwhelmed means either too many feelings all at once or a very strong reaction to a situation. He can now use this word to express how he is feeling. He has been taught a format for identifying the worry and setting out actions to help resolve it. The actions relate to what he can think, say or do to make things better. We’ve taught him the phrase self talk and he is beginning to understand what a trusted adult would do or say to him  in that situation to help and to use this as self talk. We are sharing this work with his teachers and support staff to ensure a consistent approach to talking about worries and solutions.

On the suggestion of my son’s OT we are trialling a tactical breathing programme developed for the military and emergency services to use in times of extreme stress. We wanted to have activities that were discreet and applicable to the classroom environment. Tactical breathing is a great strategy as no one needs to know that he’s doing it and he can use it to prepare for stressful situations as well as once he is feeling stressed.  We’ve incorporated tactical breathing into an anxiety busting resource for him called the 3 O’s- Overwhelmed, OT, OK.

One of the resources we’re using is a simple free app called ’Tactical Breather’ which I’ve downloaded onto his phone so it’s readily to hand for stressful situations. I’m also encouraging him to use his phone to record worries and solutions so that these can be kept and built up to form a ‘library’ of helpful strategies for managing situations.

It is hoped that over time and with continued support in this area he will become more able to self soothe and manage his anxiety. Incidentally, studies have shown that stress levels of mothers of kids with autism are similar to that of combat soldiers. Perhaps I should download that app for myself too!

Recommended products:

  • Back-to-School Self-Talk Prompt Sheet

  • Back-to-School Toolkit

  • Feelings & Emotions Sticker Pack

  • Feelings Tag-O-Meter

  • I Can Do It Learn At Home Kit

  • I Can Do It Manage My Feelings Kit

  • I Can Do It Share How I Feel Mini Kit

  • I Know What To Expect – Halloween and Bonfire Night Mini Kit

  • I Know What To Expect – My Vaccination Mini Kit

  • I Know What To Expect At Christmas & Birthdays Kit

  • I Know What To Expect At Home Kit

  • I Know What To Expect-My Christmas Day Mini Kit

  • I Know What To Expect-My COVID Test Mini Kit

  • cover image product feelings notebook

    My TomTag Feelings Notebook

  • STICKER SHEET SHOWING 20 WIDGIT SYMBOLS

    Non School Day Routines Sticker Sheet

  • Phoebe’s Green Christmas Kit in collaboration with Embracing Arts & Christmas For Kids

  • Phoebe’s Green Christmas Sticker Pack in collaboration with Embracing Arts & Christmas For Kids

  • Primary Years Classroom Bundle

  • School Morning Routines

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Let’s celebrate occupational therapy!

This week – 3rd to 9th Nov – the UK’s 30,000 occupational therapists are celebrating Occupational Therapy Week 2013.

love OTOccupational therapy enables people to live more independent and rewarding lives and occupational therapists are the skilled professionals who help people achieve this goal.

Occupational Therapy Week has made me reflect on the huge difference occupational therapy has made to the life of my autistic son Tom over the last 6 years. For Tom, ‘occupation’ refers to daily occupation i.e. the ability to participate in everyday life. Like many children with Autistic Spectrum Disorder (ASD) Tom has a sensory processing disorder which can make everyday tasks overwhelming, such as coping with classroom noise, the feel of certain fabrics or standing in a queue for lunch. He also has difficulties with both gross motor and fine motor activities such as handwriting.
OT steps
We have worked closely with an occupational therapist (OT) to identify strategies and interventions to help Tom. Activities to improve his motor skills development and reduce his sensory processing disorder have been built into a daily programme and we are very lucky that Tomas is able to follow this programme at school before lessons start. His teachers report that he is able to learn and concentrate better after his occupational therapy sessions. He also follows a ‘Chill Out’ programme devised by his OT to help him overcome any anxiety he faces throughout the school day.

 

Six years on and I’m very proud of the progress Tom has made and hugely grateful to the occupational therapists who have helped him to carry out activities he needs or wants to do. Now I just need to dig out that ‘Chill Out’ programme for myself!

OT-Week-2013-lozenge-carousFind out more about what occupational therapists do and how occupational therapy can help by visiting the British Association of Occupational Therapists’ website www.cot.co.uk.

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Teach a child to pack for school

single tag sample
Choose a day when they only need a few items

How do you teach a reluctant child how to pack their own bag with all the right things they need for the day ahead and to bring it all home again?

Clare, whose own children learnt this important skill with TomTag, recommends the following simple steps:

1. Select one day when there are not many items to take to school. Use only one tag from the TomTag pack to make a list of the relevant items and activities for that day.

2. Set aside some time the night before to pack the bag with your child and attach TomTag to their bag. Praise your child for remembering and packing everything they need for the day.

3. Ask your child to repack their bag at school using TomTag as a reminder of what to bring home. Check their bag when they return from school and praise them when they have been successful in bringing the correct items home.

4. Ask the child to pack their bag on their own for the same day using TomTag as a visual reminder of what items are needed. Then check their bag for them. Praise your child’s success. If something is forgotten, refer back to the tag and repack.

5. Ask your child to repack their bag at school using TomTag as a reminder of what to bring home. Check their bag when they return from school and praise them when they have been successful in bringing the correct items home.

School bag packed6. Your child packs their own bag using TomTag as a visual reminder and does not have it checked. Praise your child’s success.

7. Choose another more complicated day and repeat the process. Gradually build up to a full week and using the full TomTag set on the child’s bag.

Packing their school bag independently, being organised and taking responsibility for their belongings are great life skills for all children to learn but are especially important for those with additional or special needs. TomTag uses only picture cues so it’s easy for any child to use.

Product recommendation:

  • Back-to-School Toolkit

  • I Can Do It Pack My Bag For School Kit

  • Organising My School Bag

  • School Bag Packing Checklist