Posted on

Interest or obsession – a matter of perspective

The recent 175th anniversary of the issue of the Penny Black postage stamp took me back to my childhood and the joys of stamp collecting. For me this was a hobby, a pleasant way to pass the time and a special interest I could share with my dad.

Interest or obsession?

eddies
Eddie Stobart collection

Most people have interests and hobbies. For children with autism however the term ‘special interest’ implies more than a run of the mill hobby – usually that they have an obsession with a particular object, topic or collection.

Having interests is generally a good thing for most people but when they become obsessions then they can interfere with quality of life.

Managing special interests

Over the course of his childhood my son Tom, who is autistic, has had a range of special interests, including:

RUBY GLOOM 6 023
Train spotting!
  • Thomas the Tank Engine
  • Traffic lights
  • Eddie Stobart lorries
  • TinTin
  • Number cards
  • Flags
  • Trains

As a family we’ve always engaged with Tom’s various interests and tried to view them as his way of expressing himself. We’ve used them as a stepping stone to expand activities, encourage his learning and promote his communication skills.

However, as many parents know from experience, managing special interests before they morph into all-consuming obsessions is one of the many balancing acts of parenting a child on the spectrum.

Obsessions – good or bad?

Unlike my interest in stamp collecting, Tom’s special interests fulfill a number of specific needs for him. His current interest is trains and the positive effects of this include:

  • Gives him enjoyment and makes him feel happy.
  • Acts as a comforter and a coping mechanism. When he is overwhelmed or anxious he likes to immerse himself in thoughts about trains.
  • Allows him to connect with other people in social situations as he uses his interest in trains to start conversations.

It is when Tom is anxious that we see the difficulties that his special interests can cause:

  • It’s difficult to communicate with him as all he wants to talk about is trains.
  • Undermines his ability to learn at school as all his thinking time is taken up with thoughts about trains.
  • Isolates him from peers who do not want to talk about or listen to a monologue about trains.
  • Can affect family relationships as he only wants to participate in activities which revolve around his special interest.

Tips for managing special interests

It’s not generally realistic (or necessarily desirable) to remove the special interest. The best approach is to try to manage the special interest so that it does not take over everyday life.

These are some of the strategies we’ve tried to follow:

Set limits

clockTom can talk about or view videos and pictures of trains on the computer at certain times of the day e.g. when he gets home from school but only after finishing his homework or between certain hours at the weekend.

Make it predictable

Making sure that Tom can clearly access what he needs during these limited times or preparing him well in advance if it’s not going to be possible help to significantly reduce anxiety levels (his and mine!).

Encourage communication

notebook & pencilReduce the dependence on the special interest as a comfort when there are worries or anxieties by encouraging other means of communication. We set up a feelings book so that Tom can record any worries he has and we have a designated adult at school that he knows he can talk to about any issues that arise during the school day.

{Using this idea with Tom sparked the design of our TomTag Feelings Notebook which has now been added to our range of products – see links below}

Teach conversation skills

With the help of Tom’s speech and language therapist, we’re working on developing conversation skills to support his understanding of topic management and how to read the signs that people have become bored or disinterested in his train talk!

If you’d like more information or advice about this topic, Ambitious about Autism have an informative article on managing obsessions and the National Autistic society also has some practical advice on understanding behaviour and obsessions.

In the meantime, I would love to hear your experiences of managing special interests and any tips you could share.

  • Back-to-School Self-Talk Prompt Sheet

  • cover image feelings notebook extra stickers

    Extra sticker sheets for Feelings Notebook

  • Feelings & Emotions Sticker Pack

  • Feelings Bundle

  • Feelings Tag-O-Meter

  • I Can Do It Manage My Feelings Kit

  • I Can Do It Share How I Feel Mini Kit

  • I Know What To Expect – My Vaccination Mini Kit

  • cover image product feelings notebook

    My TomTag Feelings Notebook

  • Phoebe’s Green Christmas Kit in collaboration with Embracing Arts & Christmas For Kids

  • Phoebe’s Green Christmas Sticker Pack in collaboration with Embracing Arts & Christmas For Kids

Posted on 1 Comment

Visual schedules at home – making sure they work

If you’ve been following our mini-series of posts for Autism Awareness Week, you’ll already know what a visual schedule is and how it might benefit your child (Visual schedules – what, who and why) and you’ll have thought about what type you’re going to try (Visual schedules at home – choosing the right one).

Now none of that is any use unless you’re able to make it work effectively for you and your child so we’re finishing off with some top tips to making visual schedules work for you.

Start small

You might start with a daily schedule that shows the major events in your child’s day but then you can add a number of mini schedules to target particular tasks or events. Breaking activities or parts of the day down into smaller sections avoids having one schedule that is too long or difficult for your child to follow.

bedtime routineFor example, if you are having difficulty with a particular routine then try a mini schedule just for that activity. A simple way is to make up a sequence of pictures showing the individual steps in the routine and the sequence of them such as this example for a bedtime routine.

Get your child involved

FULL IMAGE FUNThe extent to which you can do this will obviously depend on the age and ability of your child but the more you can involve them in helping to make their own schedules, the more likely they are to take ownership and be committed and motivated towards using them.

This was an important consideration for us when we designed TomTag and we chose bright colours for our tags to encourage children to want to use them. We have also found that TomTag is very tactile and children really enjoy applying the stickers and clicking the buttons into place.

Be consistent – use it every day

It may take a little more effort in the beginning but using a schedule consistently and integrating it into your normal routines is a key factor to success. Have your schedules prominently displayed so that your child can see them in the places they need to use them. Use the schedule to guide your child back to an activity if he wanders away.

Encourage your child to use their schedule by using it as a reference when talking with them about what they have just experienced, what is happening now or what is coming next.

Make sure that the language you use to talk about the schedule matches your child’s level of understanding and, if appropriate, model how to use it by performing the steps yourself.

Review and adapt

SUCCESS!Just because a schedule is working now unfortunately doesn’t mean you can put your feet up and relax! Remember that the aim at the end of the day is more independence so change is a necessary (and welcome) part of the process.

Monitor how your child is using their schedules. If after a few weeks of use they no longer need the same prompts to complete the activity then congratulations! Move on and target another routine or area of difficulty. If on the other hand there’s been no progress with independence, try changing the format of your schedule or reducing the number of steps in it. Do bear in mind any other factors that may be holding things back eg. illness or problems at school and if necessary, wait and try again with the same schedule another time.

Remember to keep schedules up to date and be consistent in showing all the child’s activities especially if there are frequent changes.

Long term benefits

There are many advantages to using visual schedules at home for a child with autism/ASD and their family. As well as the more obvious immediate benefits you will gain, time and effort invested now will bear dividends in later life so be persistent – it is worth it!

The ability to follow a schedule independently is a universal skill that makes many areas of life more accessible, impacting on education (attending school, completing homework, etc), daily living tasks and ultimately employment.

We value the use of schedules at home very much and so we’re delighted that we’ve been able to add a set to our range specifically for this purpose – our I know what to expect at home pack.

 

Posted on 2 Comments

Visual schedules at home – choosing the right one

Now that you’ve read about the benefits of using visual schedules at home – what, who and why, you’re ready to move on to finding out more about how to choose the right kind of schedule for your child.

Keep it simple!

keep it simple The most important thing to think about when deciding which type of schedule will best suit your child is that it has to work when they are having a really bad day as well as a good one. That’s the time when you and your child are going to be the most stressed and probably need the support provided by a schedule even more than when things are going well.

Most of us don’t perform to our best when we’re stressed so why would your child? Consider choosing a visual schedule that is easier than you think your child can handle. More complex is not necessarily better – keep your focus on the goal of independent usage.

Object schedules

object schedulesThis is the simplest type of schedule and works well for children with few language skills or who are mostly non-verbal. Tangible objects are chosen to represent activities; for example, a cup for snacktime, a spoon for meals or a shopping bag for trips to the supermarket.

Hand the object to the child to indicate the activity they are moving or transitioning to next. It’s important to make a list of which objects you are going to use to represent each activity and above all, be consistent. Pinterest is a fabulous resource for ideas!

Picture schedules

A child is ready for a picture or photograph schedule when they can consistently match pictures in the same way you would in a simple lotto game. Some children find photographs easier to recognise whilst others can use drawings.

shower TomTag For my own son I started by laminating photographs of real objects and built up a series of activity cards he could follow. I included images of household items such as his clothes and toys as well as places we visited regularly like the park and shops. When he was ready to recognise drawings I used printable pictures from websites such as do2learn.com.

TomTag is a form of picture schedule. From my own experiences of late nights spent printing, cutting and laminating pictures and symbols, I knew when designing TomTag that it had to be an easy to use system where none of that would be necessary. 

Written schedules

written schedule exampleWe use these often in our daily lives although we may not recognise them as such. Diaries, organisers, shopping and task lists are all forms of written schedules. They obviously work best for children who can read but you can transition from picture to visual schedules by adding words alongside the pictures and then gradually work towards replacing them completely.

You might start with a basic written list and cross off items as they are done. As skills emerge, you can move on to more complex written schedules such as day planners and electronic organisers.

 

These are the three main types of schedule you will come across although there are obviously many variations you can create for each type. Sometimes it’s a matter of experimenting with different ones until you find something that’s right for you.

In part 3 Visual schedules at home – making sure they work we’ll share some top tips for using schedules and how best to make them work effectively. 

Posted on 2 Comments

Visual schedules at home – what, who and why?

Have you been advised by your child’s school or therapist to use a visual schedule at home and you’re not sure where to start or indeed if it’s really worth the effort?

To coincide with Autism Awareness Week we’re featuring a series of blogs in which we’ll look at the benefits of using visual schedules at home, the different types of schedules you can use and how to get the most out of them. We’ll start by looking at what a visual schedule actually is and why you’d want to use one.

What is a visual schedule?

what is a visual scheduleIn simple terms, any series of pictures, photographs, drawings, words or numbers which depict a sequence of events or activities can be described as a visual schedule or support.

Most of us rely on some form of schedule to help us organise our lives. Think about your calendar, to-do list or a recipe you recently followed; these are all examples of visual schedules that help us remember what we’ll be doing and when things will happen.

We rely on these supports to help us navigate our day-to-day lives and can quickly get anxious if we don’t have them. Think of a time when you’ve misplaced your diary or mobile phone and missed an important meeting or turned up late as a result.

A visual schedule (sometimes referred to as a visual timetable or timeline) for an autistic child is a way of showing them information about daily activities, objects or events using pictures, photographs, symbols or written words.

Who uses visual schedules?

As you can see, in some form or other we all do! In most cases though, we don’t need to use the same sort of visual reminders for the regular and predictable parts of our daily lives.

However, children with autism/ASD often have difficulties dealing with unstructured time and benefit from the increased structure and reassurance provided by a visual schedule. They can feel lost or anxious if daily activities aren’t clearly indicated or a sequence of events is not understood.

Imagine being totally dependent on family and friends to remind you of your daily activities and the frustration you might feel if the information they gave you was inconsistent or difficult to understand. A physical visual support provides consistency and avoids the transiency of verbal instructions.

Why use visual schedules at home?

Research has shown that many children with ASD have strong visual skills and that visual schedules are one of the most effective interventions for these children. Visual learners are more likely to remember and understand what they see than what they hear and a visual schedule can also reinforce verbal instructions that may have been missed or forgotten.

Most children will be used to seeing visual timetables and prompts at school that show the class what to expect during the school day and how to navigate around the classroom.

I know what at home collage OU smaller

For children with autism and other learning difficulties, it can be even more important to use visual schedules at home than at school. Whilst the school day is largely based on routine the same structure doesn’t usually happen at home and this can often lead to tantrums and meltdowns.

Using a visual schedule at home can help to:

  • establish clear expectations and prevent behaviour problems
  • reduce anxiety about what is happening next
  • increase self-help skills
  • develop independence which fosters self-esteem
  • reduce the amount of time spent leading an over-dependent child through activities

Sounds like a lot of effort – is it worth it?

There are clearly many advantages to using visual schedules but we know from experience that getting started and persevering can be a daunting and time consuming task.

These days there’s certainly plenty of information and resources available online and elsewhere but finding the right thing for you and your child amongst it all can be a challenge. Where do you start?

In part 2 Visual schedules at home – choosing the right one we’ll be looking at different types of visual schedules and how to choose the most suitable one for you and your child. 

In part 3 Visual schedules at home – making sure they work we’ll share some top tips for using your schedule and how best to make it work effectively.

Posted on

Teach toothbrushing with TomTag

The latest Children’s Dental Health Survey reveals startling statistics of widespread tooth decay in children. It’s clearly an issue in many households.

brush teeth tagA regular and efficient toothbrushing routine is therefore essential for putting your children on the road to good dental health.

Keeping a simple checklist on hand in the bathroom is a great way to get started.

Introducing our I can do it – brush my teeth mini kit. A tag, 6 buttons and symbols ( including 2 blank stickers for extra personalisation) = £4.00 including postage ( UK only). Far cheaper than a lifetime of fillings and dental treatment!

We also recommend downloading the free, NHS-approved Brush DJ app onto your phone or tablet. This app plays 2 minutes of music taken from the user’s device to encourage brushing for an effective length of time.

Posted on

Baking with children

grand day gromit
When was the last time you enjoyed a family baking session? 1st-7th December 2014 is Wallace & Gromit’s Big Bake week so it seemed like a good excuse to talk about the benefits of baking with children.

As well as a chance to spend some quality time together and enjoy a sense of shared achievement, baking with children can help to build their self confidence and has numerous additional benefits.

Maths and science

Counting and measuring ingredients puts maths skills to use in a meaningful and practical way. Get a real hands-on science experience by making observations and predicting change.

measuring

Reading & sequencing

Practice reading skills, learn new vocabulary and don’t forget to follow the steps of the recipe in the correct order!

Listening & speaking

Talk about what utensils and ingredients you need to prepare before you begin.

Discuss what might happen if you missed out an ingredient or step of the recipe.

Involve the child in making choices about decoration or variations.

speaking

Full sensory experience

Children use their senses to learn more about the world around them.

Touch – feel the difference in textures of ingredients

Sight – does it looked baked yet?

Hearing – listening and discussing

Smell – there’ll hopefully be some wonderful aromas to enjoy

Taste – enjoy the fruits of your labour and appreciate that wonderful home-baked flavour!

Fine motor practice

Rubbing a mixture into breadcrumbs or using cookie cutters can develop the strength children need in their fingers to help with writing skills and self care issues.

Let’s get messy!

I often use baking to engage with my autistic son.

His current interest is Eddie Stobart lorries so a lorry cookie cutter and green food colouring were all we needed to turn our favourite cookie dough into the iconic lorries!

Eddie Biscuits

On other occasions I’ve used his obsession with numbers to encourage him to get involved in making number-shaped biscuits.

Need some inspiration?

There are so many free recipes and resources on the web these days – check out Jamie Oliver and Baking Mad for some of our favourites.

And finally……

Remember to praise them for their culinary achievements and don’t forget to encourage them to help you wash up afterwards!

 

 

Posted on Leave a comment

The joy of jigsaws – 5 great benefits

With winter now well and truly on it’s way, we’re going to be spending a lot more time indoors.

What can you do to keep the kids entertained without the whole day turning into a tech fest? Simple…..

Getting started on the underground

Just choose something that’s fun, makes kids think and gives them a tangible reward at the end of their endeavours. You probably already have one of these boredom busters lurking somewhere in the house! On a recent wet weekend when helping my autistic son complete a 500 piece puzzle of the London Underground map, we re-discovered the joy of jigsaws.

The joy of jigsaws – 5 great benefits

1. COMMITMENT

Doing a jigsaw puzzle uses a number of cognitive skills including reasoning and problem solving. Even the simplest puzzle requires planning and thinking about where and how the pieces fit together which leads to a commitment to solving the problem and completing the task.

2. CONCENTRATION

When working on a jigsaw puzzle we’re using memory, critical thinking and usually a lot of patience! We need to remember the shape of pieces we’ve already tried, use strategies for sorting pieces into similar types, shapes or colours and keep trying until we find exactly where every piece fits. That all requires a great deal of concentration.

3. COORDINATION

Picking up pieces and having to slot them together without breaking up the rest of the puzzle can be a complex task. Puzzles require intricate coordination of hand and eye movements and can also help improve children’s understanding of colours and shapes.

Picking up the pieces

4. CONVERSATION

The subject of the puzzle can spark conversation around the topic. A number or alphabet puzzle can reinforce learning about letters and numbers. My son is very keen on all forms of transport so the Underground puzzle prompted him to talk about related topics.

Tackling a jigsaw together is also a great social activity and gives the chance to talk and spend time together. Keeping a puzzle on the go in the living room or kitchen is a great idea and the whole family can do a little bit whenever they fancy. Especially good for keeping the channels of communication open with teenagers!

5. COMPLETION

jigsaw 3
Finished – well almost!

Solving a jigsaw puzzle gives a real sense of satisfaction. You will have practised goal-setting and patience as well as a number of different problem-solving strategies. Your brain will have had a fantastic work-out so it deserves to celebrate! It’s just a shame our puzzle had a few pieces missing. Still, another valuable lesson learnt – life doesn’t always fall neatly into place!

 

TOP TIP: Charity shops and car boot sales are both fantastic places to look for good value jigsaws. Return them to a charity shop for someone else to enjoy once you’re finished and the charity benefits again too.

Posted on Leave a comment

Improving handwriting skills – without even lifting a pen!

The ability to write legibly remains an important skill even in this keyboard-driven era.

For children with dyspraxia, difficulties with handwriting can cause significant problems at school. As part of our focus on Dyspraxia Awareness Week we look at ways of developing children’s handwriting without the need to lift a pen!

Must haves for legible handwriting

boy balnacing on high ropes trailTo develop a legible, fluent and fast handwriting style, children need to have good gross and fine motor control as well as good hand-to-eye coordination.

Handwriting requires a steady shoulder and for the wrist and elbow to move in just the right way.

The development of good posture and balance are important.

How to develop gross motor skills

girl holding onto handles, swingingGross motor skills are the controlled movements in our whole body or limbs ie arms and legs. Activities such as dance, football, cycling and gripping climbing frames can all help develop gross motor control. Try these exercises too:

  • Skywriting – ‘write’ letters and words as large as you can in the air as if you’re holding a giant pen or pencil
  • Animal walks – develop shoulder stability by pretending to walk like an animal e.g. a crab. Makes for a great party game!
  • Jumping jacks – to improve core strength

How to develop fine motor skills

Fine motor skills are the smaller movements our bodies make, usually of the hands and fingers. Activities to improve fine motor control include:-

  • Bead threading
  • Making patterns using peg boards
  • Using chopsticks or tweezers to pick up small objects – the Operation game is great for this!
  • Bursting bubble wrap – who doesn’t love doing that?!
  • Using a squirt gun to ‘shoot’ water
  • Jenga
  • Hug and Tug

What’s Hug and Tug?

Hug & Tug is an exercise that’s particularly recommended to strengthen muscle tone in the fingers. Great for warming up the fingers before starting to write and can also help as a calming exercise.

  1. Start with interlocking your index fingers. Squeeze and pull – one relaxes as the other pulls.
  2. Repeat 3 or 4 times.
  3. Unhook your index fingers and interlock your middle fingers. Repeat steps 1 and 2.
  4. Continue with all fingers, including thumbs.

 

Most importantly, remember to make the activities as playful as possible. Kids learn best when they’re having fun!

Hop over to the National Handwriting Association for lots more information and helpful advice.

Posted on Leave a comment

Dyspraxia Awareness Week

Dyspraxia awareness week logo

Dyspraxia Awareness Week

12th – 18th October 2014

 

Organised by the Dyspraxia Foundation this nationwide campaign aims to raise awareness of dyspraxia and this year has a particular focus on the emotional impact the condition has on teenagers and young adults.

What is dyspraxia?

Sometimes referred to as the ‘clumsy’ syndrome, dyspraxia is a neurological condition that affects coordination and spatial awareness. It comonly also causes difficulties with planning or organising and is known to affect speech and thought. Dyspraxia often occurs alongside other conditions such as autism, ADHD and dyslexia.

Common features of the condition include:-

  • falling over frequently
  • difficulty walking up and downstairs
  • poor short term memory e.g. unable to remember or follow instructions
  • difficulties with dressing and fastening clothes
  • difficulties with running, jumping, catching/kicking balls
  • illegible handwriting
  • poor organisation skills

What can I do to help my child with dyspraxia?

Sensory integration therapy

Sensory integration therapy involves using equipment to help the child to take in sensory information such as touch, deep pressure, movement experiences and visual information. This sensory information helps improve spatial awareness and coordination.

Practice fine motor activities

Activities to improve fine motor skills will also help with handwriting and self care skills.

Encourage exercise and make it fun

Set up a mini assault course using simple household items – cushions to jump over, a long stick for a finish line, bean bags for throwing, etc. Try to include lots of running, jumping and throwing activities. Time them and challenge them to beat their personal best!

Simplify things

Opt for loose fit clothing that’s easy to take on and off. Look out for elastic waists on trousers and skirts, velcro fastenings on shoes and coats and jumpers rather than cardigans with fiddly buttons.

Easy belts have velcro closing belts in a variety of colours and sizes for children and adults.

Lock Laces elastic shoelaces can replace normal shoe laces on any shoes or trainers and come in lots of exciting colours!

Use checklists, daily diaries and visual supports such as TomTag to make day to day organisation easier and more predictable.

Where can I go for more information?

Dyspraxia Foundation – become a member of the foundation (£25 for 12 month membership) to access a host of information sheets and gain access to your local group.

Dyspraxia UK – can help with finding a specialist occupational therapist in your area who will be able to assess, diagnose and devise individualised therapy plans.

Posted on Leave a comment

Are you getting enough exercise?

Between us this year we have completed a triathlon and a 100k (10 x 10k) challenge.

We’re not athletes, gym addicts or super-women. It all started a few years ago when we challenged each other to enter a Race for Life 5k run. It was hard to get started but several months and lots of huffing and puffing later, we did it. The physical benefits of the exercise were obvious – we’d gone from barely managing a 10 minute jog to completing a full 5k though we weren’t going to break any land-speed records!

As busy parents we’d previously found it difficult to slot in any sort of regular exercise into our days, putting the needs of our children and families first rather than our own physical health. Although it was great to see the physical changes, what really got us both hooked were the powerful psychological benefits.

Exercise really does help to clear the mind – it gives us time away from other distractions to think more clearly and order our thoughts. If I’ve been struggling to get my head round a particular issue, heading out for a jog will often prompt new ideas to flow as well as blowing a few cobwebs away.

 

Setting a goal or signing up for a challenge is a great way to force yourself to keep to a regular regime and gives you a reason to take time for yourself. It’s essential for our mental health and self-esteem to remember that we are important too. Making a commitment to exercise commits us to some ‘me’ time – time away from children, housework and work worries.

I often hear people say “Well done, I couldn’t do it”. I tell them that’s what I used to say too. Go on – challenge yourself today!