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Autism and anxiety in lockdown – sweating it out!

Exercise routine

This year’s World Autism Awareness Week takes place against the backdrop of a global pandemic. With a third of the global population under lockdown our daily lives have been dramatically changed. Forced to remain in our houses and adapt to new circumstances, many of us will be feeling bewildered, frustrated and anxious.

Sweating it out!

The anxiety many of us are now experiencing around these unprecedented changes gives us an insight into how many young people with autism, like my son Tom, experience an unwanted change of plan – it’s fraught with worry, it’s out of anything we could have predicted and it’s not what we wanted.

Our ‘new normal’ in these strange and unsettling times is very much how he feels all the time. Imagine having to deal with that level of anxiety every single day!

So, given everyone’s heightened levels of anxiety how can you manage autism and anxiety in a lockdown?

We’d like to share some daily strategies which we are using to support Tom during this lockdown period. We’ve called it the SWEAT approach – let’s sweat this one out!

Socialise – maintain social connections

Tom misses his dad, grandparents and college friends. Thankfully technology makes it relatively easy to keep connected. However, just as in normal social situations, we’re careful not to put demands on him to socialise virtually either.  We offer him a choice of how he stays connected and how often he wants to have contact.

Work – provide structure and routine

written timetable
Tom’s written weekly timetable

Routines and rituals help establish stability and order for children and young people with autism like Tom.

Like many young people with autism Tom struggles with flexible thinking. That means he finds it difficult to adjust and readjust to changes in his routine and this can cause him anxiety. A useful strategy has been to highlight what has stayed the same and what has changed. This reassures him that even with all the uncertainty some things, like his college work, mealtimes and bedtime routines, remain the same.

Keeping familiar routines going as much as possible is therefore important to provide structure and reassurance. Tom accesses his college work and sessions with his speech therapist, English tutor and German teacher online. A simple written visual schedule shows him what to expect each day and can help navigate these confusing times. You can also create symbol-based home visual schedules quickly and easily with TomTag.

However, it’s important not to set the bar to high! Be mindful that there will be days when the ‘home-schooling’ isn’t done and instead it is just a day of being together. An example of this was during the recent warm weather when we abandoned the schedule and went for a family walk.

Emotions – share worries and concerns

talking at table
Discussing concerns

Set aside time each day to talk about worries and concerns. Try to contain your own anxieties around the current situation because this anxiety gets transferred to our children. Now more than ever our autistic children need patience and support from the people they love.

Tom, like all of us, is naturally worried about events and this is amplified by worries about whether he is catching or spreading the disease.

We keep news coverage to a minimum and explain things in a clear and consistent manner using language appropriate to his level of understanding.

Making a wish list, where we write down all the things we want to do after the pandemic has passed, is also working well – though at the moment, it mostly revolves around football and Swiss trains!

Active – encourage physical activities

Keeping active is good for both our physical and mental well being. Tom has a daily fitness programme and he’s set up an exercise challenge with his speech therapist.

using exercise bike
Tom training hard!

Focusing on activities and encouraging him to do some chores – like washing the car and helping his sister deliver essential shopping to his self-isolating grandparents and other vulnerable members of the community – provides positive reinforcement that is so vital to keep up his self-esteem, confidence and sense of purpose.

Time alone – relax with special interests

reading book
Spending time alone

Build in lots of down time, together with time to indulge special interests. With all the family thrust together it’s important for mental well being that we all carve out some time for ourselves.

It’s a difficult time for all of us particularly for children with autism and anxiety. Hopefully by following these strategies we can sweat out this lockdown period.

What tips can you share that make this lockdown period more manageable and less stressful in your house?

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Home visual schedules for children with autism -TomTag tips

At the present time, we’re all facing unprecedented uncertainty. Now that schools are closed and we are stuck at home, families like ours are under a lot of stress. For children with autism, like Tom, this is a highly confusing and anxious time. Using a visual schedule at home will help to build a sense of consistency, predictability and security for him. In this blog we discuss the reasons why home visual schedules can help children with autism and how you can get started with using them.

Why should you use visual schedules at home?

Visual schedules at home can help you to communicate to your child when activities or events will happen throughout their day.

They use a sequence of drawings, symbols, text or pictures to show what a child is expected to do.

The more children can anticipate what is happening, the safer and more secure they will feel in these rapidly changing times.

Tips for creating home visual schedules

Here are some of our tips which we have taken from our Show me guide – visual timetables, Schedules and Routines.

We call it the TomTag 4 P’s approach!

Plan

Notebook and pencil for planning schedules
Planning is key

Depending on your child’s developmental age, sit down each evening and try and plan out a rough schedule for the next day. Decide which activities for the day or part of the day you want to show. Choose the length of the schedule that you think will be appropriate for your child and adjust as necessary.

A simple daily visual schedule could include some education, fun activities and chill time (for them and you!) to help give some meaning and purpose to the day. If you’re interested in creating or using educational resources have a look at Twinkl and Education.com.

Try to replicate some elements of your child’s typical day. For example, encourage them to get dressed, brush their teeth, eat breakfast, etc. You could use a mini schedule to target these specific skills by breaking down a single activity into smaller steps.

Symbols showing a bedtime routine
Example of an evening routine using Widgit symbols

Make sure the schedule includes things like bedtime, time for exercise and meals. You could also consider giving children a chore or job to do to help them feel useful. This could be as simple as clearing the table or putting away their clothes.

Setting aside time every day to do a family activity that you know helps everyone in times of stress is also important. This could be watching a movie or playing a game.

Worried about challenging behaviour?

Try starting with activities that your child usually does willingly. It makes sense to structure the day so that harder tasks are done first when children are likely to be more rested. After schoolwork or chores are complete you can follow with easier tasks as a reward for accomplishing the harder tasks.

Prepare

Boy playing with lego as shown on his visual schedule

A home visual timetable or schedule doesn’t have to be complicated– a simple written, maybe colour-coded, chart pinned on the wall so your children can see it and refer to it will do the trick. 

There’s lots of examples of visual schedules and timetables online to copy or download. For a quick and easy way to create home visual schedules our TomTag Primary Home toolkit or Early Years Home toolkit are great options.

Prompt

Most children will be used to seeing a visual timetable and prompts at school to show them what to expect during the day. Introduce a visual schedule at home using the following steps:

  • Cue your child with a brief verbal instruction when its time for an activity to begin e.g. “check your schedule”
  • Gently guide them to look at it or place it in their hands and prompt them to look at the next activity picture
  • Using the least amount of words, describe the activity e.g. get dressed
  • Help them do the activity or model how to do it.
  • Praise them for completing the activity
  • Cue them to check their schedule again so they can move smoothly onto the next activity.
  • Fade the prompts one your child learns how to follow the schedule

Patience

Keep prompting, praising and be patient!

It may take some time but it’s also important to acknowledge the pressure we’re all under. If the schedule goes pear-shaped, take a break and try again another time.

 

Helpful resources

Widgit Online offers a free 21 day trial that would be perfect for creating your own visual schedules for kids to use at home.

Five Minute Mum is a great blog offering lots of ideas for keeping children occupied during the day.

Recommended TomTag products

  • cover image for product sticker pack early years

    Early years activities

  • Early Years Home toolkit

  • product cover image for minikit morning & evening

    I know what to expect – morning and evening

  • cover image what to expect at home kit

    I know what to expect at home

  • cover pic for early years kit

    I know what to expect Early Years

  • Primary Home toolkit

Maybe you have a tip on how best to use visual schedules at home? Please get in touch or leave a comment below.

 

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TomTag Life Skill – staying safe

With this month playing host to Safer Internet Day we’ve some tips on helping our kids stay safe in the home, looking at both online and physical safety.

Safe online

safe online image

With an almost daily diet of stories about the negative impact of the internet and new technology on children and young people, it’s easy to forget the positive aspects: the ability to learn, to connect with others, to be creative.

Safer Internet Day (February 11th) offers an ideal opportunity for parents and carers to start a conversation with their children about online safety. By teaching children to understand and navigate the risks you can help them to have a safer and more positive experience online.

Start by reading these tips for parents from the UK Safer Internet Centre and explore the many other fantastic resources on the site.

This article from the Guardian takes a interesting look at how the internet can be a great learning tool and includes some really simple ideas for changing how we approach our children’s use of it.

Drawing up a family agreement that all the family sign up to is a useful way to help everyone make better decisions and display appropriate behaviour. Here’s a great example from Digizen.org.

You can also find a wealth of information and advice on the subject from CEOP’s ThinkuKnow website.

Safe at home

Of course, we’ve all been consciously protecting our children from harm from the moment they were born but we have a responsibility to teach them the skills to keep themselves safe too.

Talking about potential dangers as part of everyday conversation and using games to teach what to do will really help to prepare your child for emergency situations without scaring them.

Play the ‘What if’ game

What if … the smoke alarm sounded?

What if … you cut yourself badly?

What if … someone came to the house when no-one else was home?

You’ll get a feel for how your child would react in a real emergency and can guide them to how they might deal with it.

Using some of the blank stickers you’ll find in each TomTag sticker pack, draw or write a list of safety rules and apply each sticker to a blank button. Put the buttons into a TomTag holder and hang or stick it up (eg. on the fridge) where it will be seen every day.


Hold a scavenger hunt

Once you’ve played the What If game and discussed ideas about how to deal with different situations, does everyone in the house know where to find the things they might need to deal with an emergency? Where’s the first-aid kit, keys to open doors, fire blanket, emergency phone numbers? Give each child a TomTag with some items on it that they need to find and let them race to be the first to find everything on their list.

Teach your child how to use what’s in the first aid kit too to treat minor injuries. The British Red Cross have a great web resource to help children aged 6-11 learn life saving first aid.


Make an escape plan

Every household should have an emergency escape plan in case of fire. Hopefully you will never need to use it but having a plan will prevent delay and help you to escape faster if you need to. Anyone can ask for a free Home Fire Safety Check from their local fire service.

Don’t forget that a weekly test of your smoke alarm is the simplest and easiest way to help prevent fire emergencies.

Give your child a clip-board and pen and let them pretend to be a safety inspector. Ask them to look around the house for safety features and hazards and let them help you fix any deficiencies.


 

Know your numbers

Make sure everyone knows the number for emergency services and try role-playing a call so that they know what they might be asked.

Teach children their home address and telephone number so that they can give it if they need to call the emergency services (also useful if they get lost when out of the house!).

Keep a list of names and numbers of friends, neighbours, family doctor, etc. by the door or telephone in case of emergencies, particularly if your child is old enough to be left at home alone.

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Your TomTag guide to an autism-tastic Christmas

green square background with text "Your TomTag guide to an autism-tastic Christmas

Christmas. Love it or hate it, it’s coming our way again – sooner than you think!

Because we know that this can be such a difficult, fraught and stressful time of year for families like ours, we’re sharing our best Tom Tag tips for an autism-tastic Christmas. 

Follow these tips of planning, preparation and patience to get ready for an autism-friendly Christmas that’s just right for you and your family.

PART 1: Planning

#1: Project Christmas: Decide what’s the best way to ‘do’ Christmas for YOU and YOUR family

We love this idea from the Gina Davies Autism Centre. Grab a cuppa, a notebook and pen and start planning. Think about the whole upcoming Christmas period, not just the day itself. Reflecting on what was stressful last Christmas is a good starting point.

  • ✍Make a list with four columns headed up Achievable, Desirable, High Risk, Impossible!
  • 🤔Think about what is planned or expected over Christmas and place each activity under one of the four columns.
  • 🗞Keep your plan to hand and add to it as necessary.
  • 👏Don’t aim for 100% – if you can manage most of the achievable, one or two things in the desirable column and manage to come through everything in the risky column be proud of yourself – you’ve helped your family enjoy the bits of Christmas that work for them.

#2: Make a personalised ‘All about Christmas’ visual guide to show all the different things you might find or do at this time of year.

For example, a photo collage or Christmas scrapbook showing Christmas objects, Christmas food and activities that only happen at Christmas e.g. meeting Father Christmas or pulling Christmas crackers. You could also include pictures of your family celebrating Christmas.

Children with autism tend to forget social information so a permanent visual guide is a great way to remind them what Christmas looks like.

#3: Talk to your child’s school or support team so you know what different things they might be doing and when.

Ask them if they have a copy of this excellent autism advent calendar for schools from the National Autistic Society. If not, print a copy off for them to use to help your child manage during the Christmas period at school.

Have a meeting with your child’s teacher to plan together how you can help your child cope with the activities coming up. Keep communication going throughout the Christmas period with a ‘Home- School’ book such as the lovely one available from That Beautiful Mind.

#4: Take time to sit down with your child and talk through anything they might be finding confusing or unsettling about Christmastime and all its festivities.
It’s often the little things we don’t even notice that can seem so huge to them.

Look back at your Christmas plan (see Planning tip #2) and for each planned activity or event, make a two-column list headed ‘Concerns and Solutions’. Ask your child what concerns they may have and then together think about and write down a solution.

For example…

  • 🏘 a visit to family or friends
  • 😟 worry about what they will drink
  • 👍agree to take their favourite drink or ask the hosts whether they have it.

This think-say-do approach is a great way for dealing with uncertainties that occur throughout the year not just at Christmastime.

#5: Make realistic plans for your shopping needs.

Choose quieter times of day, take a list, use a babysitter, bring snacks, shop online.

Christmas shopping with a child who has autism is definitely a high-risk activity! Sounds, lights and the hustle and bustle of crowds – it’s easy to see why meltdowns occur and shopping trips are abandoned. There’s no need to be superhuman. Keep it simple, practical and do-able!

#6: Talk about social rules and different expectations that people might have around Christmastime.

Christmas is usually a time of increased social contact and festive events with family and friends. Use a visual schedule to show what’s going to happen before any visitors come to the house or when going to parties, visiting family and friends. Roleplay and practise greeting visitors appropriately and saying please and thank you.

#7: If your child has little or no interest in typical toys, make a list of alternative gift ideas that you can suggest to relatives and friends when they ask what presents they can buy.

Sensory Direct have a wide range of sensory toys and equipment for autistic children. You could also suggest something small and inexpensive and ask that any money left over is put towards an activity that your child enjoys or time with a favourite babysitter.

#8: Make sure visual schedules are updated to show any changes to routine or special festive events.

Using a visual schedule, like TomTag, at home or school is a great way to make sure that children with autism (like ours) know about and can prepare themselves for anything different that’s going to happen.

In our experience, front-loading any changes to routine early on means that they can be coped with. Later changes to routine (however small) can cause distress and anxiety. Check out our I know what to expect at Christmas and birthdays kit for ideas.

#9: Let your children help to choose and put up the decorations in and around your home.

Christmas decorations can be disruptive to children with autism. Consider decorating gradually over a few days so they are not overwhelmed immediately. If inside decorations are too much then decorate outside the house only.

Twinkly, shiny, glittery Christmas lights whilst enjoyable to look at can lead to sensory overload. Consider limiting the number on display and choose lights that have different settings you can control.

PART 2: Preparation

#1: Keep sensory armour to hand for trips to the shop, parties and other festive events where sensory experiences can easily become overloads

Sensory armour could include:

  • 🎧 headphones to cut out some of the noise and sound
  • 🧢 a cap to help shut out some of the flashing lights or people
  • 🕶 dark glasses to reduce the light intensity
  • 🧸 a favourite comforter for reassurance
  • 🍪 small portions of snacks to help when things get tricky

#2: Prepare for visitors and visits from family and friends by talking to your child about who they are going to see and how to greet them

A personalised visual checklist is a great way to show your child who all the family members are that they may be meeting and what an appropriate social contact might be for each group. You can find appropriate symbols in our Christmas & Birthdays sticker pack (links below).

#3: Leave some areas of the house undecorated so there’s always a quiet place for your child to retreat to if they need it

Flashing lights, glittery objects and jingling bells all around the house are natural triggers for sensory overload. Having a Christmas – free zone to escape to can help bring stress levels caused by sensory overload down to more manageable levels.

#4: Discuss the escape plans that it’s ok for your child to use if everything gets too much for them

Having a calm and quiet place to escape the noise and bustle of Christmas is crucial. Agree with your child how they will let you know that they need to use it. For us, Tom showing me a simple red card when he’d had enough worked well.

#5: Think and talk about the extra social demands that might trigger anxieties or sensory problems

Spending time with family and friends, the expectation to be ‘happy’ and join in can be stressful for all of us – particularly for children with autism.

Use a visual schedule to explain what is going to happen and try to avoid social visits on consecutive days to allow for some downtime.

#6: Advent calendars are a great way to prepare for and understand the count down to Christmas

We love this idea from The Autism Page for a Christmas Book Advent Calendar. It combines the excitement of unwrapping a new Christmas book each day with the benefit of using the books to build up an understanding of Christmas.

#7: Be prepared that your child might not be able to sit at the table for as long as you would like (or maybe not at all). Warn your host if you are not having Christmas dinner at home.

It can be stressful to have your child’s behaviour ‘on display’ to family and friends at shared meals. Be practical, realistic and upfront about it. If your child only sits at the table for say three minutes usually then Christmas day is unlikely to be any different. Take turns to supervise them or provide them with something to keep them occupied.

Keep working on mealtime skills at home and maybe next year will be different!

#8: For children who won’t eat a traditional Christmas dinner or the main meal you’re serving, prepare and freeze their meals in advance to reduce workload on the day

Just don’t forget to get them back out of the freezer in time! 

#9: Consider your child’s sensory needs when wrapping up presents. There’s lots of great alternatives to traditional Christmas paper such as foil or fabric.

The choice of alternatives will depend on whether the sensory issues relate to over or under sensitivities. Aluminium kitchen foil is brilliant for quickly wrapping all sorts of odd shapes and sizes as well as being shiny and noisy if your child likes that kind of sensory input. For something more gentle, calming and simple to open, try fabric tied with a ribbon where just a quick pull will reveal the gift. The bonus is that these options are eco-friendly too.

#10: If toys need assembling or batteries putting in before they can be used, do this before wrapping them up so that they can be played with straight away on Christmas day

It’s always worth checking inside boxes and packaging even if you’re not expecting there to be any assembly required as those pesky ties and tape seem to get everywhere!

PART 3: Patience

#1 In the build up to Christmas, remember to exercise some self care so that you can manage your energy levels and remain focused on what you and your child can realistically achieve

Play some relaxing music, burn some scented candles, take a relaxing hot bath to relax. Practise breathing!

#2 Take the time to read social stories with your child about what to expect at Christmas, including meeting with Santa.

Social stories are particularly helpful for activities that only happen at Christmas. You can make your own or check out the FREE printable Christmas social story about meeting Santa on the wonderful parenting blog And Next Comes L – Hyperlexia & Autism Resources

#3 Christmas is a time when sensory issues are greater than ever. To help prevent sensory sensitivities becoming overloads, allow your child to have some control over these experiences.

Where possible let your child have direct control of their sensory experience. For example, hand them control of buttons for the lights (if appropriate) or provide sensory defences like ear defenders or sunglasses.

#4 Many children with autism don’t like surprises so it might help not to wrap presents up.

You could also just tell them what’s inside or use clear cellophane or plain paper for wrapping. If your child finds wrapping paper highly confusing, e.g. thinks that pictures on the paper show what’s inside, then using plain wrapping paper with a clear picture of the contents stuck on the outside will help.

#5 If your child has dietary restrictions, don’t despair. Accept where your chid is now with their food and be patient.

Preferences change so it might not be the same next year!

If you are eating with other people at their house and your child won’t eat any of the food or insists on a particular plate, cup, spoon etc. provide these things so your child can join the party briefly and tell the hosts in advance.

#6 Get some Christmas helpers! Be patient with yourself and ask for help with preparations from family and friends.

Encouraging the whole family to get involved makes everyone feel included and part of the Christmas build-up. Don’t feel like you have to power through on your own.

#7 Buy or make your child’s Christmas costume or party outfit early and let them wear it around the house for short periods of time to help them become comfortable with how it feels.

Costumes and new clothes can be challenging for children with sensory sensitivities. Encouraging them to wear these around the house helps them become more tolerant of the different fabrics against their skin.

#8 Playfully and patiently practise Christmas traditions such as receiving and unwrapping presents and pulling crackers so that your child knows what to expect and can join in.

Play wrapping games by wrapping up items so your child gets used to opening the paper and finding something inside. Buy some cheap crackers and show your child how to pull them and shout ‘bang’ so the noise doesn’t come as a surprise. Practise wearing hats and reading jokes.

#9 Some children may be overwhelmed by a large number of presents all at once.

It’s natural to want to spoil them but be patient and try introducing gifts one at a time over the day or over several days. Alternatively, adopt an advent style approach and bring out a small gift each day on the run-up to Christmas day.

#10 Have the Christmas that suits your family as it is now. Forget about the perfect day, embrace the imperfections and enjoy your special moments

Remember that this is your Christmas too. Try and relax and enjoy the bits that work well. Recognise that some things are too hard at the moment but with patience and practise they may well be achievable next year.

Merry Christmas from your TomTag team!

Useful resources:

  • cover image sticker pack christmas & birthdays

    Christmas & birthdays

  • cover image download christmas

    Christmas survival guide

  • cover image what to expect at christmas kit

    I know what to expect at Christmas & birthdays

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Coping with a family Christmas for an anxious teen with autism


For my son, Tom, thinking about our family Christmas meal is causing him anxiety. Spending time together and creating memories over a shared meal – it’s what many people love about Christmas – but it’s not so easy for an anxious teen with autism. Continue reading Coping with a family Christmas for an anxious teen with autism

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Dyslexia and executive functioning skills

Dyslexia is most commonly understood as a condition that causes difficulties with reading. It is less well known that dyslexia can also impact on organisation and time management skills, which is sometimes referred to as executive functioning. 

What are the signs?

A child with dyslexia who has executive functioning issues may have difficulty:

  • remembering to take to school everything they need for the day 
  • being organised and preparing their kit in advance
  • sticking with an activity and not being distracted
  • understanding what day of the week it is and what different things they need to do each day
  • remembering their routine and prioritising the tasks needed to get ready for school  

What can you do to help?

There’s lots you can do to help a child with these issues. Here’s just a few ideas:

  • Get into a regular routine and stick to it. Children who struggle with time management often feel more secure and less anxious with a familiar routine.
  • Make checklists to break down a task or routine into smaller steps. Visual prompts work better than verbal reminders as they are constant and consistent.
  • Use calendars and planners – colour-coding often works really way to identify regular activities and highlight special events.
  • Encourage development of organisational skills with lots of repetition, reminders and practice. 

How could TomTag help?

  • school girl carrying rucksack with packing checklist attachedTomTag is ideal for all children with dyslexia as the picture symbols we use are easily recognisable and don’t rely on a child’s ability to read for TomTag to be effective. 
  • Make morning and evening routine reminders for tasks that need to be completed and the order they should be done using an I know what to expect – morning and evening minikit or for more varied options try these kits I can do it self care skills or I know what to expect at home
  • Create a school bag packing checklist using the I can do it pack my bag for school kit that will remind them exactly what they need to take to school each day, and bring home again. 
  • Take advantage of TomTag’s colourful tags by colour-coordinating checklist and routine reminder tags with any planners, calendars or charts that you’re also using.  

Useful resources:

  • cover image for product sticker pack early years

    Early years activities

  • Early Years Home toolkit

  • I can do it – pack my bag for school

  • product cover image for minikit morning & evening

    I know what to expect – morning and evening

  • cover image what to expect at home kit

    I know what to expect at home

  • cover pic for early years kit

    I know what to expect Early Years

  • cover image sticker pack my school kit

    My school kit

  • Primary Home toolkit

  • cover image download school morning routines

    School morning routines

 

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Back to school – help with anxiety and organisation

school girl carrying rucksack with packing checklist attachedYou’ve got the uniform, the new shoes, pencil-case and stationery and they’re all neatly labelled with your child’s name – but being ready to start or go back to school isn’t just about having all the right kit.   

Starting school for the first time, going to a new school or moving to a new class, teacher or environment are some of the biggest transitions in a child’s life. It’s normal to feel anxious or worried at times of transition or change and the routine and environment of daily school life can present many challenges in itself for some children. It can often be difficult for children to understand and express these feelings and know how to cope with them effectively. If a child can share their worries and concerns with their parents and teachers it will be easier to help them develop good coping skills and strategies. 

My TomTag Feelings Notebook is an ideal tool for communication between child, parent and teacher. It helps a child to express, understand and communicate their feelings and anxieties. Parents and teachers can better understand the causes and triggers for a child’s anxiety or behaviour, by identifying patterns over a number of days or weeks. This written record can help them to work in partnership to give a consistent and coordinated level of support to the child. 

The TomTag Share how I feel tag and Manage my feelings kit are additional complementary products that can be used in conjunction with My TomTag Feelings Notebook to help a child further explore, express and understand their feelings and emotions.

The brand new lunch box you bought just a few weeks ago gets left on the kitchen table in the rush to get everyone to school on time – what now? Arriving at school without all the right kit for the day ahead is a common cause of anxiety and stress for many school children. Not being able to take part in activities, being in trouble with teachers, not being comfortable and having attention drawn to them are all unwelcome consequences of forgotten pe-kits, lunchpacks, jumpers and the like. TomTag’s I can do it – pack my bag for school kit is a simple checklist that attaches to a child’s school bag to remind them what they need to take to school and bring home again each day.

We’ve created some new amazing value bundles incorporating all these products to help you prepare and support you child as they head back to school or if they’re starting school for the first time. Click on the product links below to find out more about each product and details of our bundles. 

  • cover image feelings notebook extra stickers

    Extra sticker sheets for Feelings Notebook

  • cover image sticker pack feelings & emotions

    Feelings & emotions

  • cover image download feelings tag

    Feelings tag-o-meter

  • cover image for back to school bundle products

    I can do it – back to school bundles

  • cover image for feelings bundle product

    I can do it – feelings bundle

  • I can do it – manage my feelings

  • I can do it – pack my bag for school

  • cover image for share how I feel minikit product

    I can do it – share how I feel

  • cover image sticker pack my school kit

    My school kit

  • cover image product feelings notebook

    My TomTag Feelings Notebook

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Surviving Christmas with help from TomTag

Christmas is a magical and exciting time but for many children with autism and other SEN, the festive period can be anything but wonderful.

Changes in routine, a house pulsating with flashing Christmas lights and a steady stream of visitors can be too overwhelming and lead to sensory overload, anxiety, distress and confusion.
Making adjustments that help your child cope better at this time of the year will hopefully allow them and all the family to have a more enjoyable and relaxing experience.
It’s also a good opportunity to work on important social skills that can be transferred to other situations at different times of the year as well.

my daily routineJust another day

Keeping to the same familiar routines as much as possible, even on Christmas Day, can be key to helping things run more smoothly. There are no rules to say things have to be done a certain way so do whatever suits your family best.

It’s sometimes not possible to avoid some disturbance or change to the regular schedule at this time of year. Children who struggle with changes to routine can find this very unsettling. If they use a visual schedule at home or school, this is a great way to make sure they know about (and can prepare themselves for) anything different that’s going to happen.

If different or unusual foods are likely to be an issue, think about preparing and freezing your child’s favourite meal ahead of the big day so that it’s easy to serve alongside everyone else’s dinner and gives you one thing less to worry about.

decorations and christmas symbolsDecorations

Flashing lights, glittery objects and jingling bells all around the house are natural triggers for sensory overload. Let your child help to choose the decorations you buy and put up and consider decorating gradually over a few days so they are not overwhelmed immediately. Make sure to leave some areas of the house undecorated so there’s always somewhere for the child to retreat if needed.

Be aware of sensory triggers such as balloons, Christmas crackers, party poppers, festive music – consider using headphones or ear defenders at parties, carol concerts or similar events if sudden or loud noises are disturbing.  

Use an “All about Christmas” symbol list or simple social story to support a conversation with your child to familiarise them with all the different things they can expect to find at Christmas time.

Social expectations

family visits tagsChristmas is usually a time of increased social contact and festive events with family and friends. Use a visual schedule to show what’s going to happen before any visitors come to the house or when you’re going to parties, visiting family and friends, church services, etc.

Maybe even keep a separate tag as a checklist to show all the family members they may be meeting and what an appropriate social contact might be for each group (eg. hugs are ok for family, hand shake for friends, etc.).

There’ll be lots of opportunities to teach social skills such as learning to greet visitors appropriately and saying please and thank you. Include relevant symbols in your visit schedule list or use another tag that you keep handy for a discreet reminder of social behaviour rules.

Presents

Many children with autism don’t particularly like surprises and aren’t good at faking delight if they get an unwanted gift. Some may prefer to have their presents left unwrapped or, if they do like the unwrapping part, they might want you to tell them what’s inside first.

They may also be overwhelmed by a large number of presents in one go. Try introducing them one at a time over the day (or several days) or adopt an advent calendar-style approach, bringing out a small gift each day in the run up to Christmas.

Don’t forget to put batteries in toys in advance so that they can be played with straight away!

Relax!

Above all, remember that this is your Christmas as well. Get as much support from family and friends as possible and share out the workload wherever you can. Get children involved by giving them jobs to do which will keep them occupied and give them something to focus on.

We used the kit I know what to expect at Christmas & birthdays for the examples here. We know it can be a particularly taxing and stressful time of year for our loved ones with extra sensory and emotional needs, so there’s also an expanded version of the basic kit available which includes additional tags and blank buttons plus a Feelings & Emotions sticker pack. We call this our Christmas survival kit

This guide is available as a free downloaded using the link below.

  • cover image sticker pack christmas & birthdays

    Christmas & birthdays

  • cover image download christmas

    Christmas survival guide

  • cover image what to expect at christmas kit

    I know what to expect at Christmas & birthdays

 

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New school year, new start with TomTag

Looking forward to the children going back to school but dreading those chaotic school mornings?

Help your kids learn to get themselves ready for school, know and understand their own routine and remember what they need to pack – with less nagging from you and a lot less stress all round.

It really is easy with a little help from TomTag!

  • cover image for back to school bundle products

    I can do it – back to school bundles

  • product cover teeth minikit

    I can do it – brush my teeth

  • cover image for feelings bundle product

    I can do it – feelings bundle

  • I can do it – pack my bag for school

  • I can do it – self care skills

  • product cover toilet routine minikit

    I can do it – toilet routine

  • product cover image for minikit morning & evening

    I know what to expect – morning and evening

  • cover image what to expect at home kit

    I know what to expect at home

  • cover image sticker pack my school kit

    My school kit

  • cover image sticker pack self care

    Self care

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TomTag: your stories – Elizabeth

We learn a great deal from listening to our customers about their experiences with TomTag. It’s always interesting to find out about the different ways they use our products and wonderful to hear how it often makes such a real difference to their lives.

We thought it might be helpful to share some of those experiences and ideas with you too so we’ve interviewed a number of our customers who have been kind enough to talk about their different stories and backgrounds with us.

First up is Elizabeth, a childminder from London, and mum to two girls aged 4 and 12. 

Why did you purchase TomTag?

I bought TomTag to use with my daughters as both girls are on the autistic spectrum. Although they are both verbal and relatively high functioning they still need some support with their daily life activities.

I’d describe my youngest daughter as being in a permanent ‘fight or flight’ mode, always needing reassurance about what to expect during the day. The eldest has executive functioning issues and needs support to help her sequence activities and with organisation.

Did you use any other type of visual supports before you tried TomTag?

I used to make my own picture timetables and sequences. It was very time consuming having to print off the pictures, laminate them and then attach them to Velcro. My youngest daughter really didn’t like the Velcro system so when I saw TomTag advertised in Aukids magazine I decided to give them a try.

So, how do you use it?

In lots of different ways! 

For my younger daughter I have set up:

 

 

  • daily timetables that I create by prominently displaying 3 tags on hooks on the fridge (and also in the other rooms where she needs to use them) to show her what her morning, afternoon and evening routines should be
  • a toilet routine reminder hanging in the bathroom which is a simple picture sequence checklist to break the routine down into small steps.
  • social story resources to help prepare for things like visits to the doctor and hairdresser. I explain what’s going to happen and the order of events whilst we look at the pictures together.

My elder daughter uses TomTag for: 

Younger child tag examples

How has TomTag helped your children?

My little one finds TomTag very comforting. She feels in control of her day now and is less anxious about what is going to happen next. Seeing her routine in pictures also helps with teaching her sequences and time concepts. She loves the ‘hands on’ system – she particularly enjoys clicking the buttons in and out!

My older daughter finds TomTag really helps with her organisational skills. She feels less anxious at school knowing she has all the right things with her. She also likes the ’hands on’ nature of TomTag and she’s now started taking responsibility for planning and organising her day. For example, when she started going to choir as an after school activity, she changed her tag by herself to show this change of routine.

I’ve also found the tips and advice for teaching life skills on your website very helpful.

Do you have any suggestions for how we could make TomTag even better?

The range of images supplied in the various sticker packs is generally good. I have used the blank stickers to draw some personalised images – an umbrella, keys and phone charger.

I think there could be some additional ‘days out’ type images e.g. summer fair, fun fair, adventure park or castle. Perhaps a jumbo version of the tags and buttons would be useful for children who have sight problems but I appreciate the product would not then be as portable!

Overall I think TomTag is a wonderful product and it has really made life easier for both my daughters.

Thank you Elizabeth for sharing your story and for giving us some insightful tips on how TomTag works in your home.

Follow the highlighted links in the interview to find out more details about all the products used by Elizabeth and her family.

Would you like to share your story with us?

All it takes is a short chat with us on the ‘phone, ideally send us a few pics of your TomTags in use then just leave the rest to us. It’s easy to get in touch with us, all the details are on our Contact Us page.