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Going Away – help with planning and preparation

Does your child get anxious about school trips, days out or family holidays?

My son has autism and any trip away from home can be a challenging prospect. This is because like many children with autism, he struggles with routine changes, sensory issues and an intolerance of uncertainty.

However, over the years we’ve learnt that with planning and preparation, days out and holidays can be enjoyed rather than endured. We’d like to share our top tips in order to help other parents and carers facing similar issues.

Plan, plan and plan again! 

  • Try searching for ‘autism friendly’ holidays or days out. The National Autistic Society has a list of companies and organisations who hold an Autism Friendly Award.
  • Contact hotels or venues to explain your circumstances and your child’s needs – if they don’t seem supportive then look elsewhere.
  • Check out a destination or venue in advance. If possible make a pre-visit or get a map and consider any potential trigger areas and quiet zones you could head to in case of a meltdown.
  • Practice unusual events such as packing and unpacking a suitcase. A packing checklist is a great way to involve your child in holiday preparations and encourages independence.
  • Use visual schedules to show your child what to expect on the holiday, give structure to their day, and help with transitions between activities.
  • Social stories are a useful way to explain what ‘going on holiday’ actually means. Depending on your child’s language ability, you can discuss what concerns they have about the holiday or trip and then work with them to come up with a list of possible solutions.
  • If you’re travelling by plane, check the airport website to see if they offer any visual guides or booklets. Manchester and Gatwick have excellent guides and many UK airports now offer autism specific page on their websites.  You may also be able to request a wristband or lanyard which entitles you to use the fast-track lanes at security or access quiet waiting rooms. Alternatively, you might want to make your own visual schedule for the airport to explain the process.

Hope for the best, prepare for the worst

However well you plan there’s no guarantee that unexpected events , such as delays won’t occur. It’s a good idea to have a ‘distraction’ pack to hand. A bag containing snacks, music or noise-cancelling headphones, games or entertainment devices to head off any potentially challenging behaviour.

Consider a form of identification such as a card or ID holder attached to your child’s clothing (such as a belt loop) just in case they wander off or become lost. This should give their name, your contact details and any medical requirements. Even if your child is capable of providing this information themselves, in a new and stressful setting this will be much harder.

Helpful resources

We used the kit I know what to expect going away to make the checklists and schedules shown.

The National Autistic Society have some helpful fact sheets with information about school trips and going on holiday.

 A really  informative blog Autism and UK airports – improving assistance for passengers with autism  has a brilliant summary of what’s  available at UK airports.

  • cover image what to expect going away

    I know what to expect going away

  • cover image sticker pack staying away from home

    Staying away from home

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Dyslexia and executive functioning skills

Dyslexia is most commonly understood as a condition that causes difficulties with reading. It is less well known that dyslexia can also impact on organisation and time management skills, which is sometimes referred to as executive functioning. 

What are the signs?

A child with dyslexia who has executive functioning issues may have difficulty:

  • remembering to take to school everything they need for the day 
  • being organised and preparing their kit in advance
  • sticking with an activity and not being distracted
  • understanding what day of the week it is and what different things they need to do each day
  • remembering their routine and prioritising the tasks needed to get ready for school  

What can you do to help?

There’s lots you can do to help a child with these issues. Here’s just a few ideas:

  • Get into a regular routine and stick to it. Children who struggle with time management often feel more secure and less anxious with a familiar routine.
  • Make checklists to break down a task or routine into smaller steps. Visual prompts work better than verbal reminders as they are constant and consistent.
  • Use calendars and planners – colour-coding often works really way to identify regular activities and highlight special events.
  • Encourage development of organisational skills with lots of repetition, reminders and practice. 

How could TomTag help?

  • school girl carrying rucksack with packing checklist attachedTomTag is ideal for all children with dyslexia as the picture symbols we use are easily recognisable and don’t rely on a child’s ability to read for TomTag to be effective. 
  • Make morning and evening routine reminders for tasks that need to be completed and the order they should be done using an I know what to expect – morning and evening minikit or for more varied options try these kits I can do it self care skills or I know what to expect at home
  • Create a school bag packing checklist using the I can do it pack my bag for school kit that will remind them exactly what they need to take to school each day, and bring home again. 
  • Take advantage of TomTag’s colourful tags by colour-coordinating checklist and routine reminder tags with any planners, calendars or charts that you’re also using.  

Useful resources:

  • I can do it – pack my bag for school

  • I can do it – self care skills

  • product cover image for minikit morning & evening

    I know what to expect – morning and evening

  • cover image what to expect at home kit

    I know what to expect at home

  • cover image sticker pack my school kit

    My school kit

  • cover image download school morning routines

    School morning routines

 

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Back to school – help with anxiety and organisation

school girl carrying rucksack with packing checklist attachedYou’ve got the uniform, the new shoes, pencil-case and stationery and they’re all neatly labelled with your child’s name – but being ready to start or go back to school isn’t just about having all the right kit.   

Starting school for the first time, going to a new school or moving to a new class, teacher or environment are some of the biggest transitions in a child’s life. It’s normal to feel anxious or worried at times of transition or change and the routine and environment of daily school life can present many challenges in itself for some children. It can often be difficult for children to understand and express these feelings and know how to cope with them effectively. If a child can share their worries and concerns with their parents and teachers it will be easier to help them develop good coping skills and strategies. 

My TomTag Feelings Notebook is an ideal tool for communication between child, parent and teacher. It helps a child to express, understand and communicate their feelings and anxieties. Parents and teachers can better understand the causes and triggers for a child’s anxiety or behaviour, by identifying patterns over a number of days or weeks. This written record can help them to work in partnership to give a consistent and coordinated level of support to the child. 

The TomTag Share how I feel tag and Manage my feelings kit are additional complementary products that can be used in conjunction with My TomTag Feelings Notebook to help a child further explore, express and understand their feelings and emotions.

The brand new lunch box you bought just a few weeks ago gets left on the kitchen table in the rush to get everyone to school on time – what now? Arriving at school without all the right kit for the day ahead is a common cause of anxiety and stress for many school children. Not being able to take part in activities, being in trouble with teachers, not being comfortable and having attention drawn to them are all unwelcome consequences of forgotten pe-kits, lunchpacks, jumpers and the like. TomTag’s I can do it – pack my bag for school kit is a simple checklist that attaches to a child’s school bag to remind them what they need to take to school and bring home again each day.

We’ve created some new amazing value bundles incorporating all these products to help you prepare and support you child as they head back to school or if they’re starting school for the first time. Click on the product links below to find out more about each product and details of our bundles. 

  • cover image sticker pack feelings & emotions

    Feelings & emotions

  • cover image download feelings tag

    Feelings tag-o-meter

  • cover image for back to school bundle products

    I can do it – back to school bundles

  • cover image for feelings bundle product

    I can do it – feelings bundle

  • I can do it – manage my feelings

  • I can do it – pack my bag for school

  • cover image for share how I feel minikit product

    I can do it – share how I feel

  • cover image sticker pack my school kit

    My school kit

  • cover image product feelings notebook

    My TomTag Feelings Notebook

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Surviving Christmas with help from TomTag

Christmas is a magical and exciting time but for many children with autism and other SEN, the festive period can be anything but wonderful.

Changes in routine, a house pulsating with flashing Christmas lights and a steady stream of visitors can be too overwhelming and lead to sensory overload, anxiety, distress and confusion.
Making adjustments that help your child cope better at this time of the year will hopefully allow them and all the family to have a more enjoyable and relaxing experience.
It’s also a good opportunity to work on important social skills that can be transferred to other situations at different times of the year as well.

my daily routineJust another day

Keeping to the same familiar routines as much as possible, even on Christmas Day, can be key to helping things run more smoothly. There are no rules to say things have to be done a certain way so do whatever suits your family best.

It’s sometimes not possible to avoid some disturbance or change to the regular schedule at this time of year. Children who struggle with changes to routine can find this very unsettling. If they use a visual schedule at home or school, this is a great way to make sure they know about (and can prepare themselves for) anything different that’s going to happen.

If different or unusual foods are likely to be an issue, think about preparing and freezing your child’s favourite meal ahead of the big day so that it’s easy to serve alongside everyone else’s dinner and gives you one thing less to worry about.

decorations and christmas symbolsDecorations

Flashing lights, glittery objects and jingling bells all around the house are natural triggers for sensory overload. Let your child help to choose the decorations you buy and put up and consider decorating gradually over a few days so they are not overwhelmed immediately. Make sure to leave some areas of the house undecorated so there’s always somewhere for the child to retreat if needed.

Be aware of sensory triggers such as balloons, Christmas crackers, party poppers, festive music – consider using headphones or ear defenders at parties, carol concerts or similar events if sudden or loud noises are disturbing.  

Use an “All about Christmas” symbol list or simple social story to support a conversation with your child to familiarise them with all the different things they can expect to find at Christmas time.

Social expectations

family visits tagsChristmas is usually a time of increased social contact and festive events with family and friends. Use a visual schedule to show what’s going to happen before any visitors come to the house or when you’re going to parties, visiting family and friends, church services, etc.

Maybe even keep a separate tag as a checklist to show all the family members they may be meeting and what an appropriate social contact might be for each group (eg. hugs are ok for family, hand shake for friends, etc.).

There’ll be lots of opportunities to teach social skills such as learning to greet visitors appropriately and saying please and thank you. Include relevant symbols in your visit schedule list or use another tag that you keep handy for a discreet reminder of social behaviour rules.

Presents

Many children with autism don’t particularly like surprises and aren’t good at faking delight if they get an unwanted gift. Some may prefer to have their presents left unwrapped or, if they do like the unwrapping part, they might want you to tell them what’s inside first.

They may also be overwhelmed by a large number of presents in one go. Try introducing them one at a time over the day (or several days) or adopt an advent calendar-style approach, bringing out a small gift each day in the run up to Christmas.

Don’t forget to put batteries in toys in advance so that they can be played with straight away!

Relax!

Above all, remember that this is your Christmas as well. Get as much support from family and friends as possible and share out the workload wherever you can. Get children involved by giving them jobs to do which will keep them occupied and give them something to focus on.

We used the kit I know what to expect at Christmas & birthdays for the examples here. We know it can be a particularly taxing and stressful time of year for our loved ones with extra sensory and emotional needs, so there’s also an expanded version of the basic kit available which includes additional tags and blank buttons plus a Feelings & Emotions sticker pack. We call this our Christmas survival kit

This guide is available as a free downloaded using the link below.

  • cover image sticker pack christmas & birthdays

    Christmas & birthdays

  • cover image download christmas

    Christmas survival guide

  • cover image what to expect at christmas kit

    I know what to expect at Christmas & birthdays

 

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School morning routines

Getting the whole family ready for school and out of the door on time and with all the right kit is never easy. There’s usually lots of shouting, nagging and panic involved!

Chaos or calm?

A less stressful and chaotic morning is possible with a little preparation. When children have the skills to get ready independently, they can start to take responsibility for themselves and their belongings without needing you to remind them every time. It might take a little practice and patience at first but it will be worth the effort in the long run.

Establishing a consistent morning routine (and the evening before) is also key to getting things to run more smoothly and helps everyone to understand what’s expected of them.

Visual checklists and schedules are an ideal tool to use when helping your child learn routines and skills for independence.

Use a consistent morning routine

Getting back into a routine after a long break or when starting school for the first time can be really difficult, especially for very young children or those on the autistic spectrum.

Create a visual reminder of all the tasks that need to be completed each morning and list them in the order in which you want them to be done.

It’s ok to use more detailed steps at first or attach a separate detailed list for each task to help make the process easier to understand.

Keep this list in a handy place in your child’s bedroom so it’s within reach when they get out of bed. Get them used to following the routine step by step each morning and work towards them checking things off independently each day.

Avoid the dressing battlefields

self care i can rememberKeep another checklist in the bedroom that will show your child what clothes they need to wear and what they should put on first. This avoids the pants over trousers scenario!

Setting out clothes the night before saves a lot of stress trying to find clean clothes in the morning. Start by laying out all the clothes for them so that everything’s ready to go the next day and then build up to them taking the responsibility for preparing this themselves.   

Tackle hygiene skills

self care follow instructionsTaking care of personal hygiene is a very important life skill for all our children to learn. We perform these tasks for ourselves everyday without needing to think about exactly what we’re doing.
For children just learning these skills, we need to break the task down into smaller steps. A picture list describing each step in the process is a great visual reminder that they can refer to each time they do the task which will help them to master getting it right.
Keeping a teethbrushing, toilet routine or washing checklist in the bathroom will help your child develop the independence to get ready in the morning by themselves and speed up the whole family’s routine.

Pack all the right kit

pack for school carrying bagGiving your child the responsibility for finding and packing everything they need for school might seem like a crazy idea but even the youngest or most disorganised child can soon get the hang of it, increasing their independence and reducing anxieties that occur over forgotten items.
Use a simple checklist attached to their schoolbag listing all the things they need to remember to take for each day of the week. Then they’ll also have it with them at school to remind them what to bring home at the end of the day too.
Getting into the habit of packing the night before is a great way to avoid that last minute panic searching for homework or games kit in the morning when you really should be leaving the house!

Make your own schedules and checklists

  • product cover teeth minikit

    I can do it – brush my teeth

  • I can do it – pack my bag for school

  • I can do it – self care skills

  • product cover image for minikit morning & evening

    I know what to expect – morning and evening

  • cover image what to expect at home kit

    I know what to expect at home

  • cover image sticker pack my school kit

    My school kit

  • cover image download school morning routines

    School morning routines

 

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New school year, new start with TomTag

Looking forward to the children going back to school but dreading those chaotic school mornings?

Help your kids learn to get themselves ready for school, know and understand their own routine and remember what they need to pack – with less nagging from you and a lot less stress all round.

It really is easy with a little help from TomTag!

  • cover image for back to school bundle products

    I can do it – back to school bundles

  • product cover teeth minikit

    I can do it – brush my teeth

  • cover image for feelings bundle product

    I can do it – feelings bundle

  • I can do it – pack my bag for school

  • I can do it – self care skills

  • product cover toilet routine minikit

    I can do it – toilet routine

  • product cover image for minikit morning & evening

    I know what to expect – morning and evening

  • cover image what to expect at home kit

    I know what to expect at home

  • cover image sticker pack my school kit

    My school kit

  • cover image sticker pack self care

    Self care

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TomTag: your stories – Elizabeth

We learn a great deal from listening to our customers about their experiences with TomTag. It’s always interesting to find out about the different ways they use our products and wonderful to hear how it often makes such a real difference to their lives.

We thought it might be helpful to share some of those experiences and ideas with you too so we’ve interviewed a number of our customers who have been kind enough to talk about their different stories and backgrounds with us.

First up is Elizabeth, a childminder from London, and mum to two girls aged 4 and 12. 

Why did you purchase TomTag?

I bought TomTag to use with my daughters as both girls are on the autistic spectrum. Although they are both verbal and relatively high functioning they still need some support with their daily life activities.

I’d describe my youngest daughter as being in a permanent ‘fight or flight’ mode, always needing reassurance about what to expect during the day. The eldest has executive functioning issues and needs support to help her sequence activities and with organisation.

Did you use any other type of visual supports before you tried TomTag?

I used to make my own picture timetables and sequences. It was very time consuming having to print off the pictures, laminate them and then attach them to Velcro. My youngest daughter really didn’t like the Velcro system so when I saw TomTag advertised in Aukids magazine I decided to give them a try.

So, how do you use it?

In lots of different ways! 

For my younger daughter I have set up:

 

 

  • daily timetables that I create by prominently displaying 3 tags on hooks on the fridge (and also in the other rooms where she needs to use them) to show her what her morning, afternoon and evening routines should be
  • a toilet routine reminder hanging in the bathroom which is a simple picture sequence checklist to break the routine down into small steps.
  • social story resources to help prepare for things like visits to the doctor and hairdresser. I explain what’s going to happen and the order of events whilst we look at the pictures together.

My elder daughter uses TomTag for: 

Younger child tag examples

How has TomTag helped your children?

My little one finds TomTag very comforting. She feels in control of her day now and is less anxious about what is going to happen next. Seeing her routine in pictures also helps with teaching her sequences and time concepts. She loves the ‘hands on’ system – she particularly enjoys clicking the buttons in and out!

My older daughter finds TomTag really helps with her organisational skills. She feels less anxious at school knowing she has all the right things with her. She also likes the ’hands on’ nature of TomTag and she’s now started taking responsibility for planning and organising her day. For example, when she started going to choir as an after school activity, she changed her tag by herself to show this change of routine.

I’ve also found the tips and advice for teaching life skills on your website very helpful.

Do you have any suggestions for how we could make TomTag even better?

The range of images supplied in the various sticker packs is generally good. I have used the blank stickers to draw some personalised images – an umbrella, keys and phone charger.

I think there could be some additional ‘days out’ type images e.g. summer fair, fun fair, adventure park or castle. Perhaps a jumbo version of the tags and buttons would be useful for children who have sight problems but I appreciate the product would not then be as portable!

Overall I think TomTag is a wonderful product and it has really made life easier for both my daughters.

Thank you Elizabeth for sharing your story and for giving us some insightful tips on how TomTag works in your home.

Follow the highlighted links in the interview to find out more details about all the products used by Elizabeth and her family.

Would you like to share your story with us?

All it takes is a short chat with us on the ‘phone, ideally send us a few pics of your TomTags in use then just leave the rest to us. It’s easy to get in touch with us, all the details are on our Contact Us page. 

 

 

 

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TomTag life skill of the month – shopping – March

woman shoppingShopping can be an exhausting experience even without children in tow but we all know that there are times when shopping without them can’t be avoided. There will even be times when we might want to take the kids along to help them learn some important new skills.

A shopping trip can help develop life skills on a number of levels. In the early years, understanding behavioural expectations or learning to deal with different sensory stimuli might be the primary aim. An older child or teenager preparing for independent living might be learning to choose the items they need in a supermarket and how to pay for them.

With our TomTag Tips and the right planning and preparation, there’s no reason why you can’t turn your shopping trip into a productive, educational and dare we say it, maybe even a fun experience!

Be prepared

mar shop

Social stories

Can be used effectively to help children with autism understand why we need to go shopping and what to expect when they get there. Try a Pinterest search to find examples for writing your own shopping social story.

Shopping visual timeline examplesVisual timelines

Create timelines using TomTag to show the different stages of a shopping trip and make sure to talk through them with your child before you go. Knowing what to expect can greatly help to reduce anxiety and stress for a child with autism. The amount of detail needed in your timeline will vary with each child. Use FIRST – THEN prompts in a single tag at the simplest level or link 2 tags together to create a more detailed shopping trip sequence like the ones shown here.

Routine

For some children, the route to the shops might be important to their routine too – try to stick to the same one each time if possible to help prevent them becoming distressed before you even get to the shops! Include the route or what transport you will use in your timeline as well.

Don’t forget to include a visual prompt to define that there will be a point when the shopping trip will finish too (maybe the home symbol, for example) – cue relief all round!

Make a list

mar list

Shopping with a list is a good discipline for anyone to adopt – it can save us time and money as we’re more likely to only buy the things we really need.

You can introduce different skills by involving your child in preparing your shopping list. They can learn to budget and prioritise by only including the items that are needed for a meal or recipe. Perhaps they want something that’s not on the list – maybe offer to add it next time if they are good this time to teach delayed gratification.

Taking a prepared list will also help to keep a child engaged whilst shopping as they search for and check things off their list. They’re learning to be responsible and it helps them to realise they can have a role to play in everyday family tasks.

Educate

mar educate

shopping counting skillsShopping provides a wealth of educational opportunities. Here are just a few examples:

Matching – finding items on the shelf that match the items on their list.

Counting – use a different coloured tag to show how many of each item you need to buy and have them put the right number into the trolley, like this example using apples and oranges.

Calculating – working out the best value choice often involves quite complex calculations, particularly with 3-for-2, half price and BOGOFs (buy one get one free) to compare!

Making healthy choices – reading and understanding food labels is a key starting point to being able to select healthier options.

Sensory considerations

mar sensory

sensory lightsLoud sounds, overwhelming smells and flickering lights can be particularly confusing and frightening for a child with sensory issues. If your child has trouble processing light or noises then provide some sensory ‘armour’ such as sunglasses, ear defenders or a baseball cap to reduce the potential of sensory overload.

Have a signal your child can use to indicate when they are feeling overwhelmed. My son would show us his red TomTag when he’d had enough!

Behaviour

mar behaviourshopping behaviour prompt sAllowing for any sensory issues, explain the expectations for behaviour when going shopping and inside shops. Be prepared that your child may not get it right first time, or every time – be patient, practice and remember to praise them when things do go well.

Prepare a visual prompt and talk through the rules before you go then take the tag with you as a handy reminder should you need it when you’re out and about.

Role play

mar roleplay

Shopping for shoes and clothes with a child with autism can often be particularly difficult and require specific explanation of what to expect before you go.

Try role playing the shopping experience at home first. For example, if you need to shop for shoes you’ll most likely need to get their feet measured as well. Practice having your child let you take off their shoes and touch their feet as the assistant in the shop might do. This will help you know what triggers any specific reaction and then prepare for how to deal with it.

John Lewis have recently introduced an autism-friendly shoe fitting service in some of their stores. Do you know of any other local or national shops offering this kind of service to autism families that you’d like to recommend?

Resources

For a more detailed look at strategies to help children with autism cope with shopping trips see this great resource from the National Autistic Society.

  • cover image sticker pack at the shops

    At the shops

  • cover image sticker pack food drink basics

    Food & drink basics

  • cover image sticker pack food and drink extended

    Food & drink extended

  • cover image download going shopping

    Going shopping

  • product cover help at shops

    I can do it – help at the shops

  • I can do it – independent living

  • cover image what to expect going shopping

    I know what to expect going shopping

  • cover image sticker pack my shopping list

    My shopping list

  • cover image sticker pack out & about

    Out & about

  • cover image sticker pack shopping for clothes and shoes

    Shopping for clothes & shoes

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TomTag Life Skill of the Month – staying safe – February 16

With this month playing host to Safer Internet Day we’re focusing our life skills theme on helping our kids stay safe in the home, looking at both online and physical safety.

Safe online

safe online image

With an almost daily diet of stories about the negative impact of the internet and new technology on children and young people, it’s easy to forget the postitive aspects: the ability to learn, to connect with others, to be creative.

Safer Internet Day (February 9th) offers an ideal opportunity for parents and carers to start a conversation with their children about online safety. By teaching children to understand and navigate the risks you can help them to have a safer and more positive experience online.

Start by reading these tips for parents from the UK Safer Internet Centre and explore the many other fantastic resources on the site.

This article from the Guardian takes a interesting look at how the internet can be a great learning tool and includes some really simple ideas for changing how we approach our children’s use of it.

Drawing up a family agreement that all the family sign up to is a useful way to help everyone make better decisions and display appropriate behaviour. Here’s a great example from Digizen.org.

You can also find a wealth of information and advice on the subject from CEOP’s ThinkuKnow website.

Safe at home

Of course, we’ve all been consciously protecting our children from harm from the moment they were born but we have a responsiblity to teach them the skills to keep themselves safe too.

Talking about potential dangers as part of everyday conversation and using games to teach what to do will really help to prepare your child for emergency situations without scaring them.

TomTag image what ifPlay the ‘What if’ game

Our fire safety rulesWhat if … the smoke alarm sounded?

What if … you cut yourself badly?

What if … someone came to the house when no-one else was home?

You’ll get a feel for how your child would react in a real emergency and can guide them to how they might deal with it.

Using some of the blank stickers you’ll find in each TomTag sticker pack, draw or write a list of safety rules and apply each sticker to a blank button. Put the buttons into a TomTag holder and hang or stick it up (eg. on the fridge) where it will be seen every day.


TomTag image first aid kitHold a scavenger hunt

Once you’ve played the What If game and discussed ideas about how to deal with different situations, does everyone in the house know where to find the things they might need to deal with an emergency? Where’s the first-aid kit, keys to open doors, fire blanket, emergency phone numbers? Give each child a TomTag with some items on it that they need to find and let them race to be the first to find everything on their list.

Teach your child how to use what’s in the first aid kit too to treat minor injuries. The British Red Cross have a great web resouce to help children aged 6-11 learn life saving first aid.


TomTag image fire escape planMake an escape plan

Every household should have an emergency escape plan in case of fire. Hopefully you will never need to use it but having a plan will prevent delay and help you to escape faster if you need to. Anyone can ask for a free Home Fire Safety Check from their local fire service.

Don’t forget that a weekly test of your smoke alarm is the simplest and easiest way to help prevent fire emergencies.

Give your child a clip-board and pen and let them pretend to be a safety inspector. Ask them to look around the house for safety features and hazards and let them help you fix any deficiencies.


TomTag image emergency services

Know your numbers

Make sure everyone knows the number for emergency services and try role-playing a call so that they know what they might be asked.

Teach children their home address and telephone number so that they can give it if they need to call the emergency services (also useful if they get lost when out of the house!).

Keep a list of names and numbers of friends, neighbours, family doctor, etc. by the door or telephone in case of emergencies, particularly if your child is old enough to be left at home alone.

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TomTag life skill of the month – Sleepovers – Jan 2016

LIFE SKILL JAN sleepoversSleepovers –  or more accurately ‘stay up late, midnight feast, pillow fights and no-sleep’-overs! First sleepovers are a big step for most kids anyway and can be a particularly daunting prospect and social minefield for children with autism (and their parents!).

Of course, you are the best person to gauge when your child might be ready for their first sleepover or night away and there’s usually no reason to rush this. There may be unavoidable times though when your child needs to stay away from home for other reasons – parental separation, overnight respite or a hospital stay, for example. If skills have already been practiced or preparations made, dealing with an emergency visit could be a lot less stressful for everyone involved.

Careful planning and thorough preparation is the key to ensuring your child’s overnight stay has more chance of being a successful and happy experience. Using your TomTag button holders and our In the house and Staying away from home symbols, you can create handy visual supports that will help prepare your child and ease any anxieties about their next stay away from home, wherever that may be.

Here are our top tips for sleepover success but we’d love to hear your stories and advice too!

Plan, plan and plan again

sleeping bagsleepover 1Ask the host parent questions about meal plans, activities and where your child will sleep and use this information to prepare your child as much as possible.

Try role playing events such as getting up in the night for the toilet or asking for a drink. Social stories are a great resource that help explain what your child can expect in common social situations. Read A Parents Guide to Social Stories from the ‘Normal Enough’ blog for a great explanation about creating your own, including a brilliant example of a sleepover story.

** UPDATE ** Normal Enough blog link broken – try these ideas from Child-Autism-Parent-Cafe

You might also want to try using a visual timeline like this one to show your child what to expect.

Do a test run

bed time

Everything’s easier second time around, right?

Invite a friend for an overnight stay at your home so that your child gets used to how a sleepover works in a familiar environment. Then perhaps try again at the home of a close family member.

Hopefully these practice runs will help iron out any anxieties and give your child confidence for the real thing.

Make an escape plan

car

Let your child know that it’s ok to call you and come home if they need to at any time. If your child is feeling anxious or scared, it’s better that they know they can come home and try again another time than stay feeling worried and be put off the idea for good.

 

 

All about me

mobile phoneShare as much relevant information as possible about your child with the host parent before the event. Make sure they have your correct telephone number and ideally a back-up number to call as well just in case.

Include details of any medical needs, allergies and potential challenges or sensory triggers such as loud noises or food preferences. Your advice on strategies for comforting your child at bedtime and handling any flare ups will help the sleepover run more smoothly.

Time to pack

packsleepover 2Don’t forget to pack a favourite blanket, toy or book – anything that makes the child feel comfortable which will help ease any anxiety. Ask the host parent to let your child keep to their familiar bedtime routine as much as they want to.

TomTag is perfect for making a packing checklist of all the items they need to take and a handy reminder when they need to bring everything home again too!

 

Keep trying

thank youIf at first you don’t succeed – keep trying!

Let your child know you’re proud of them for giving it a go even if they needed to bail out. Tell them it’s not a failure if they did come home early and that with more practice it will get easier. Talk through what any difficulties were and make an action plan for next time.

Remember to thank the host friend and parents for helping and let them know how much you value their support.