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Going Away – help with planning and preparation

Does your child get anxious about school trips, days out or family holidays?

My son has autism and any trip away from home can be a challenging prospect. This is because like many children with autism, he struggles with routine changes, sensory issues and an intolerance of uncertainty.

However, over the years we’ve learnt that with planning and preparation, days out and holidays can be enjoyed rather than endured. We’d like to share our top tips in order to help other parents and carers facing similar issues.

Plan, plan and plan again! 

  • Try searching for ‘autism friendly’ holidays or days out. The National Autistic Society has a list of companies and organisations who hold an Autism Friendly Award.
  • Contact hotels or venues to explain your circumstances and your child’s needs – if they don’t seem supportive then look elsewhere.
  • Check out a destination or venue in advance. If possible make a pre-visit or get a map and consider any potential trigger areas and quiet zones you could head to in case of a meltdown.
  • Practice unusual events such as packing and unpacking a suitcase. A packing checklist is a great way to involve your child in holiday preparations and encourages independence.
  • Use visual schedules to show your child what to expect on the holiday, give structure to their day, and help with transitions between activities.
  • Social stories are a useful way to explain what ‘going on holiday’ actually means. Depending on your child’s language ability, you can discuss what concerns they have about the holiday or trip and then work with them to come up with a list of possible solutions.
  • If you’re travelling by plane, check the airport website to see if they offer any visual guides or booklets. Manchester and Gatwick have excellent guides and many UK airports now offer autism specific page on their websites.  You may also be able to request a wristband or lanyard which entitles you to use the fast-track lanes at security or access quiet waiting rooms. Alternatively, you might want to make your own visual schedule for the airport to explain the process.

Hope for the best, prepare for the worst

However well you plan there’s no guarantee that unexpected events , such as delays won’t occur. It’s a good idea to have a ‘distraction’ pack to hand. A bag containing snacks, music or noise-cancelling headphones, games or entertainment devices to head off any potentially challenging behaviour.

Consider a form of identification such as a card or ID holder attached to your child’s clothing (such as a belt loop) just in case they wander off or become lost. This should give their name, your contact details and any medical requirements. Even if your child is capable of providing this information themselves, in a new and stressful setting this will be much harder.

Helpful resources

We used the kit I know what to expect going away to make the checklists and schedules shown.

The National Autistic Society have some helpful fact sheets with information about school trips and going on holiday.

 A really  informative blog Autism and UK airports – improving assistance for passengers with autism  has a brilliant summary of what’s  available at UK airports.

  • cover image what to expect going away

    I know what to expect going away

  • cover image sticker pack staying away from home

    Staying away from home

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Dyslexia and executive functioning skills

Dyslexia is most commonly understood as a condition that causes difficulties with reading. It is less well known that dyslexia can also impact on organisation and time management skills, which is sometimes referred to as executive functioning. 

What are the signs?

A child with dyslexia who has executive functioning issues may have difficulty:

  • remembering to take to school everything they need for the day 
  • being organised and preparing their kit in advance
  • sticking with an activity and not being distracted
  • understanding what day of the week it is and what different things they need to do each day
  • remembering their routine and prioritising the tasks needed to get ready for school  

What can you do to help?

There’s lots you can do to help a child with these issues. Here’s just a few ideas:

  • Get into a regular routine and stick to it. Children who struggle with time management often feel more secure and less anxious with a familiar routine.
  • Make checklists to break down a task or routine into smaller steps. Visual prompts work better than verbal reminders as they are constant and consistent.
  • Use calendars and planners – colour-coding often works really way to identify regular activities and highlight special events.
  • Encourage development of organisational skills with lots of repetition, reminders and practice. 

How could TomTag help?

  • school girl carrying rucksack with packing checklist attachedTomTag is ideal for all children with dyslexia as the picture symbols we use are easily recognisable and don’t rely on a child’s ability to read for TomTag to be effective. 
  • Make morning and evening routine reminders for tasks that need to be completed and the order they should be done using an I know what to expect – morning and evening minikit or for more varied options try these kits I can do it self care skills or I know what to expect at home
  • Create a school bag packing checklist using the I can do it pack my bag for school kit that will remind them exactly what they need to take to school each day, and bring home again. 
  • Take advantage of TomTag’s colourful tags by colour-coordinating checklist and routine reminder tags with any planners, calendars or charts that you’re also using.  

Useful resources:

  • I can do it – pack my bag for school

  • I can do it – self care skills

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    I know what to expect – morning and evening

  • cover image what to expect at home kit

    I know what to expect at home

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    My school kit

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    School morning routines

 

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Back to school – help with anxiety and organisation

school girl carrying rucksack with packing checklist attachedYou’ve got the uniform, the new shoes, pencil-case and stationery and they’re all neatly labelled with your child’s name – but being ready to start or go back to school isn’t just about having all the right kit.   

Starting school for the first time, going to a new school or moving to a new class, teacher or environment are some of the biggest transitions in a child’s life. It’s normal to feel anxious or worried at times of transition or change and the routine and environment of daily school life can present many challenges in itself for some children. It can often be difficult for children to understand and express these feelings and know how to cope with them effectively. If a child can share their worries and concerns with their parents and teachers it will be easier to help them develop good coping skills and strategies. 

My TomTag Feelings Notebook is an ideal tool for communication between child, parent and teacher. It helps a child to express, understand and communicate their feelings and anxieties. Parents and teachers can better understand the causes and triggers for a child’s anxiety or behaviour, by identifying patterns over a number of days or weeks. This written record can help them to work in partnership to give a consistent and coordinated level of support to the child. 

The TomTag Share how I feel tag and Manage my feelings kit are additional complementary products that can be used in conjunction with My TomTag Feelings Notebook to help a child further explore, express and understand their feelings and emotions.

The brand new lunch box you bought just a few weeks ago gets left on the kitchen table in the rush to get everyone to school on time – what now? Arriving at school without all the right kit for the day ahead is a common cause of anxiety and stress for many school children. Not being able to take part in activities, being in trouble with teachers, not being comfortable and having attention drawn to them are all unwelcome consequences of forgotten pe-kits, lunchpacks, jumpers and the like. TomTag’s I can do it – pack my bag for school kit is a simple checklist that attaches to a child’s school bag to remind them what they need to take to school and bring home again each day.

We’ve created some new amazing value bundles incorporating all these products to help you prepare and support you child as they head back to school or if they’re starting school for the first time. Click on the product links below to find out more about each product and details of our bundles. 

  • cover image sticker pack feelings & emotions

    Feelings & emotions

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    Feelings tag-o-meter

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    I can do it – back to school bundles

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    I can do it – feelings bundle

  • I can do it – manage my feelings

  • I can do it – pack my bag for school

  • cover image for share how I feel minikit product

    I can do it – share how I feel

  • cover image sticker pack my school kit

    My school kit

  • cover image product feelings notebook

    My TomTag Feelings Notebook

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Surviving Christmas with help from TomTag

Christmas is a magical and exciting time but for many children with autism and other SEN, the festive period can be anything but wonderful.

Changes in routine, a house pulsating with flashing Christmas lights and a steady stream of visitors can be too overwhelming and lead to sensory overload, anxiety, distress and confusion.
Making adjustments that help your child cope better at this time of the year will hopefully allow them and all the family to have a more enjoyable and relaxing experience.
It’s also a good opportunity to work on important social skills that can be transferred to other situations at different times of the year as well.

my daily routineJust another day

Keeping to the same familiar routines as much as possible, even on Christmas Day, can be key to helping things run more smoothly. There are no rules to say things have to be done a certain way so do whatever suits your family best.

It’s sometimes not possible to avoid some disturbance or change to the regular schedule at this time of year. Children who struggle with changes to routine can find this very unsettling. If they use a visual schedule at home or school, this is a great way to make sure they know about (and can prepare themselves for) anything different that’s going to happen.

If different or unusual foods are likely to be an issue, think about preparing and freezing your child’s favourite meal ahead of the big day so that it’s easy to serve alongside everyone else’s dinner and gives you one thing less to worry about.

decorations and christmas symbolsDecorations

Flashing lights, glittery objects and jingling bells all around the house are natural triggers for sensory overload. Let your child help to choose the decorations you buy and put up and consider decorating gradually over a few days so they are not overwhelmed immediately. Make sure to leave some areas of the house undecorated so there’s always somewhere for the child to retreat if needed.

Be aware of sensory triggers such as balloons, Christmas crackers, party poppers, festive music – consider using headphones or ear defenders at parties, carol concerts or similar events if sudden or loud noises are disturbing.  

Use an “All about Christmas” symbol list or simple social story to support a conversation with your child to familiarise them with all the different things they can expect to find at Christmas time.

Social expectations

family visits tagsChristmas is usually a time of increased social contact and festive events with family and friends. Use a visual schedule to show what’s going to happen before any visitors come to the house or when you’re going to parties, visiting family and friends, church services, etc.

Maybe even keep a separate tag as a checklist to show all the family members they may be meeting and what an appropriate social contact might be for each group (eg. hugs are ok for family, hand shake for friends, etc.).

There’ll be lots of opportunities to teach social skills such as learning to greet visitors appropriately and saying please and thank you. Include relevant symbols in your visit schedule list or use another tag that you keep handy for a discreet reminder of social behaviour rules.

Presents

Many children with autism don’t particularly like surprises and aren’t good at faking delight if they get an unwanted gift. Some may prefer to have their presents left unwrapped or, if they do like the unwrapping part, they might want you to tell them what’s inside first.

They may also be overwhelmed by a large number of presents in one go. Try introducing them one at a time over the day (or several days) or adopt an advent calendar-style approach, bringing out a small gift each day in the run up to Christmas.

Don’t forget to put batteries in toys in advance so that they can be played with straight away!

Relax!

Above all, remember that this is your Christmas as well. Get as much support from family and friends as possible and share out the workload wherever you can. Get children involved by giving them jobs to do which will keep them occupied and give them something to focus on.

We used the kit I know what to expect at Christmas & birthdays for the examples here. We know it can be a particularly taxing and stressful time of year for our loved ones with extra sensory and emotional needs, so there’s also an expanded version of the basic kit available which includes additional tags and blank buttons plus a Feelings & Emotions sticker pack. We call this our Christmas survival kit

This guide is available as a free downloaded using the link below.

  • cover image sticker pack christmas & birthdays

    Christmas & birthdays

  • cover image download christmas

    Christmas survival guide

  • cover image what to expect at christmas kit

    I know what to expect at Christmas & birthdays

 

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School morning routines

Getting the whole family ready for school and out of the door on time and with all the right kit is never easy. There’s usually lots of shouting, nagging and panic involved!

Chaos or calm?

A less stressful and chaotic morning is possible with a little preparation. When children have the skills to get ready independently, they can start to take responsibility for themselves and their belongings without needing you to remind them every time. It might take a little practice and patience at first but it will be worth the effort in the long run.

Establishing a consistent morning routine (and the evening before) is also key to getting things to run more smoothly and helps everyone to understand what’s expected of them.

Visual checklists and schedules are an ideal tool to use when helping your child learn routines and skills for independence.

Use a consistent morning routine

Getting back into a routine after a long break or when starting school for the first time can be really difficult, especially for very young children or those on the autistic spectrum.

Create a visual reminder of all the tasks that need to be completed each morning and list them in the order in which you want them to be done.

It’s ok to use more detailed steps at first or attach a separate detailed list for each task to help make the process easier to understand.

Keep this list in a handy place in your child’s bedroom so it’s within reach when they get out of bed. Get them used to following the routine step by step each morning and work towards them checking things off independently each day.

Avoid the dressing battlefields

self care i can rememberKeep another checklist in the bedroom that will show your child what clothes they need to wear and what they should put on first. This avoids the pants over trousers scenario!

Setting out clothes the night before saves a lot of stress trying to find clean clothes in the morning. Start by laying out all the clothes for them so that everything’s ready to go the next day and then build up to them taking the responsibility for preparing this themselves.   

Tackle hygiene skills

self care follow instructionsTaking care of personal hygiene is a very important life skill for all our children to learn. We perform these tasks for ourselves everyday without needing to think about exactly what we’re doing.
For children just learning these skills, we need to break the task down into smaller steps. A picture list describing each step in the process is a great visual reminder that they can refer to each time they do the task which will help them to master getting it right.
Keeping a teethbrushing, toilet routine or washing checklist in the bathroom will help your child develop the independence to get ready in the morning by themselves and speed up the whole family’s routine.

Pack all the right kit

pack for school carrying bagGiving your child the responsibility for finding and packing everything they need for school might seem like a crazy idea but even the youngest or most disorganised child can soon get the hang of it, increasing their independence and reducing anxieties that occur over forgotten items.
Use a simple checklist attached to their schoolbag listing all the things they need to remember to take for each day of the week. Then they’ll also have it with them at school to remind them what to bring home at the end of the day too.
Getting into the habit of packing the night before is a great way to avoid that last minute panic searching for homework or games kit in the morning when you really should be leaving the house!

Make your own schedules and checklists

  • product cover teeth minikit

    I can do it – brush my teeth

  • I can do it – pack my bag for school

  • I can do it – self care skills

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    I know what to expect – morning and evening

  • cover image what to expect at home kit

    I know what to expect at home

  • cover image sticker pack my school kit

    My school kit

  • cover image download school morning routines

    School morning routines

 

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New school year, new start with TomTag

Looking forward to the children going back to school but dreading those chaotic school mornings?

Help your kids learn to get themselves ready for school, know and understand their own routine and remember what they need to pack – with less nagging from you and a lot less stress all round.

It really is easy with a little help from TomTag!

  • cover image for back to school bundle products

    I can do it – back to school bundles

  • product cover teeth minikit

    I can do it – brush my teeth

  • cover image for feelings bundle product

    I can do it – feelings bundle

  • I can do it – pack my bag for school

  • I can do it – self care skills

  • product cover toilet routine minikit

    I can do it – toilet routine

  • product cover image for minikit morning & evening

    I know what to expect – morning and evening

  • cover image what to expect at home kit

    I know what to expect at home

  • cover image sticker pack my school kit

    My school kit

  • cover image sticker pack self care

    Self care

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TomTag: your stories – Elizabeth

We learn a great deal from listening to our customers about their experiences with TomTag. It’s always interesting to find out about the different ways they use our products and wonderful to hear how it often makes such a real difference to their lives.

We thought it might be helpful to share some of those experiences and ideas with you too so we’ve interviewed a number of our customers who have been kind enough to talk about their different stories and backgrounds with us.

First up is Elizabeth, a childminder from London, and mum to two girls aged 4 and 12. 

Why did you purchase TomTag?

I bought TomTag to use with my daughters as both girls are on the autistic spectrum. Although they are both verbal and relatively high functioning they still need some support with their daily life activities.

I’d describe my youngest daughter as being in a permanent ‘fight or flight’ mode, always needing reassurance about what to expect during the day. The eldest has executive functioning issues and needs support to help her sequence activities and with organisation.

Did you use any other type of visual supports before you tried TomTag?

I used to make my own picture timetables and sequences. It was very time consuming having to print off the pictures, laminate them and then attach them to Velcro. My youngest daughter really didn’t like the Velcro system so when I saw TomTag advertised in Aukids magazine I decided to give them a try.

So, how do you use it?

In lots of different ways! 

For my younger daughter I have set up:

 

 

  • daily timetables that I create by prominently displaying 3 tags on hooks on the fridge (and also in the other rooms where she needs to use them) to show her what her morning, afternoon and evening routines should be
  • a toilet routine reminder hanging in the bathroom which is a simple picture sequence checklist to break the routine down into small steps.
  • social story resources to help prepare for things like visits to the doctor and hairdresser. I explain what’s going to happen and the order of events whilst we look at the pictures together.

My elder daughter uses TomTag for: 

Younger child tag examples

How has TomTag helped your children?

My little one finds TomTag very comforting. She feels in control of her day now and is less anxious about what is going to happen next. Seeing her routine in pictures also helps with teaching her sequences and time concepts. She loves the ‘hands on’ system – she particularly enjoys clicking the buttons in and out!

My older daughter finds TomTag really helps with her organisational skills. She feels less anxious at school knowing she has all the right things with her. She also likes the ’hands on’ nature of TomTag and she’s now started taking responsibility for planning and organising her day. For example, when she started going to choir as an after school activity, she changed her tag by herself to show this change of routine.

I’ve also found the tips and advice for teaching life skills on your website very helpful.

Do you have any suggestions for how we could make TomTag even better?

The range of images supplied in the various sticker packs is generally good. I have used the blank stickers to draw some personalised images – an umbrella, keys and phone charger.

I think there could be some additional ‘days out’ type images e.g. summer fair, fun fair, adventure park or castle. Perhaps a jumbo version of the tags and buttons would be useful for children who have sight problems but I appreciate the product would not then be as portable!

Overall I think TomTag is a wonderful product and it has really made life easier for both my daughters.

Thank you Elizabeth for sharing your story and for giving us some insightful tips on how TomTag works in your home.

Follow the highlighted links in the interview to find out more details about all the products used by Elizabeth and her family.

Would you like to share your story with us?

All it takes is a short chat with us on the ‘phone, ideally send us a few pics of your TomTags in use then just leave the rest to us. It’s easy to get in touch with us, all the details are on our Contact Us page. 

 

 

 

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TomTag for all the family

Reading through our recent blog posts you could be forgiven for thinking that TomTag is just for children with special needs. As an avid list-maker and user myself, I know that it can be a useful tool for any member of the family.

I find the last few weeks of school a frustrating time. All the good habits my children had at the start of the year are falling by the wayside and I’m powerless to stop them. What’s the point of trying to enforce a routine when all they care about is the end of term school trip and staying up late to watch TV?

So I’ve decided that if I can’t change things now then I’ll prepare for a time when I can whilst the problems are still fresh in my mind. I’m fortunate to have two fairly independent and reasonably well organised children – one already in secondary school and another about to start in September. Yet somehow I still seem to find myself sounding like a broken record when they come home from school every evening!

Using TomTag, I’ve made a list for each of them which will hang by the coat hooks or on the bedroom door. To paraphrase the famous saying, hopefully these pictures will save me 1,000 words.

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TomTag for all the family

 

 

Do you think it will work? Check back in September and find out!

Have you got any interesting ideas for how to put TomTag to use in your house – why not share them with us and our readers?

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10 top transition tips – smoothing the move from primary to secondary school

Transitions are on my mind at the moment as I’m busy training for my first triathlon. I’m anxious about how I’m going to manage the transition between swim, bike and run but I know that the secret is in being prepared and making sure I’ve got everything I need in the right place at the right time.

Major transitions

One of life’s major transitions – the move from primary to secondary school – is about to be faced by thousands of children around the country. It’s natural that they will all experience some level of worry and apprehension about this but for many children on the autistic spectrum this transition can be particularly difficult.

Transitions issues

Change in itself is a problem because many children with ASD find it difficult to think flexibly and so become anxious about the unknown. They will prefer to stick with the familiar routines established in primary school as they will have difficulty predicting what might happen in the new setting.

A lack of social understanding and the ability to read and understand social cues accurately mean that children with autism may not know how to behave or respond in the many new social situations they will encounter in secondary school.

Add sensory processing difficulties to this mix and it’s easy to see why children on the spectrum can quickly become overwhelmed by the sensory stimulii of this new environment.

Preparation is key

When my own autistic son faced the transition from his small and familiar primary school to a large comprehensive I tried to prepare him as much as possible beforehand. By investing time in preparation now using some of the tips and tricks we’ve listed below, we hope you’ll be able to make those first days and weeks in the new school a lot less worrying for you and your child.

Top 10 transition tips

School-map_annotated
Make a map of the school

1. Make a map of the layout of the school with photographs of important places e.g. school canteen, main hall, classrooms

2. Try to obtain photographs of key staff particularly the teaching assistants that are going to support during lessons

3. Establish a link with a member of staff who can act as a mentor and home-school liaison. Set up a home-school book to pass on information about any worries/concerns or any relevant developments at home.

4. Get used to a homework routine in advance of the new start. Start simply with a 10-15 minute task at a regular time each evening in a quiet environment.

5. Make a visual timetable showing the school day to make lesson order & break times more predictable.

6. Practice the journey to and from school, making sure the child knows the location of bus stops, road-crossings, meeting points or anything else significant on their journey.

7. Familiarise your child with the new uniform and deal with any irritating seams or labels.

8. Practice packing the correct items for school (TomTag is perfect for this!)

GFI264-Calendar

9. Use a calendar to count down the days to starting the new school

10. Create a personal profile written with help of your child to include all the information new staff should know about them

 

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Organisational skills for children with SEN

The phrase ‘special needs’ is a very generic term. Children with special needs are not only different from their so called ‘normal’ peers but they are also different from one another. Each child with special needs presents with a unique profile of strengths and weaknesses.

Organisational skills

A lack of organisational skills is the one challenge that the majority of children with special needs face. Coats go missing. Books and lunch boxes are forgotten. Hours are spent each month searching through the lost property box at school looking for gloves, scarves, gym kit and jumpers.

Organisational skills are a challenge for most SEN children because they have limited and inefficient internal structure. They are generally unable to organise their belongings, prioritize their actions or utilize their time efficiently to meet deadlines.  They also struggle with temporal (time related) concepts so they have difficulty assessing, for example, how much time it takes to get ready for school or finish homework.

Daily struggles

These organisational difficulties can put incredible strain on a family. As a parent of an autistic boy I know how frustrating it is when your child has organisational difficulties. I’m also aware how upsetting it is for Tomas to be constantly scolded and reprimanded for behaviours that are mainly out of his control. Tomas does not forget things because he is lazy or unmotivated. He has a neurological condition that means he struggles on a daily basis to make sense of the world we live in.

School morning organisation

Getting ready for school in a morning is a real test of organisational skills for any child. For a SEN child like Tomas the morning routine can be a source of extreme anxiety. There’s so much to remember – homework, lunch boxes, gym kit. Parents are also under pressure to leave on time and ensure that everyone has the right equipment for the day ahead.

Like many SEN children, Tomas is extraordinarily visual. He needs to see things in order to remember and organise them. If things are out of sight they are out of mind. Tomas’s visual strength was one of the sources of inspiration for TomTag (that’s why it’s named after him!). As TomTag clips easily to any school bag it is always to hand and the problem of misplacing the list is avoided.

Confidence and independence

Learning to pack a bag for school sounds simple but it requires skills and self confidence. Using TomTag as a prompt, Tomas has been able to learn over the last few years how to pack his school bag for himself. The fact that he is now able to pack independently for high school is a real testament to the success of TomTag. By giving him a consistent external tool to use he has learnt to overcome his minimal internal structure.

Teachers and parents benefit from children learning to pack a school bag independently. Fewer items are left in the infamous lost property box, morning routines are less stressful and for children like Tomas they are not only ready for school but have acquired important organisational skills which will pay dividends later in life.

Recommended products:

  • product cover teeth minikit

    I can do it – brush my teeth

  • I can do it – pack my bag for school

  • I can do it – self care skills

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    I know what to expect – morning and evening

  • cover image what to expect at home kit

    I know what to expect at home

  • cover image sticker pack my school kit

    My school kit

  • cover image download school morning routines

    School morning routines