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21 Years Living With Autism – Lessons I Have Learnt

                                                                                                                                ‘While we try to teach our children all about life, our children teach us what life is all about‘ ~ Angela Schwindt

My son, Tom, the inspiration for  TomTag visual supports, turned 21 years recently. It seems like only yesterday that he was a new born baby snuggled in my arms. Like any new mum it felt like the beginning of new things. A rainbow of hopes, dreams and possibilities spreading out before us. 

Autism cast a shadow on that rainbow.

But the rainbow was always there. It  just needed to be looked at from a new perspective.  With the understanding that hopes, dreams and possibilities mean different things to different people. 

Over the last 21 years Tom has taught me so much. Not  just about lorries,  swiss trains and football 😉 But, about the important qualities in life – patience, resilience, humility and determination.  That each of us has a right to be here, to be heard and to live life to its fullest potential.

To celebrate Tom turning 21, I’m sharing 21 lessons I’ve learnt from living with autism. I know what a rollercoaster it can be parenting an autistic child so I hope our experiences bring some positivity and hope to those of you who may be going through similar  experiences.  Please know that however hard it is now,  with time, things do change, the shadows lift and the rainbow reveals itself🌈

Clare ❤

Lesson 1: Let Go Of Expectations

Tom having fun with the gravel!

As a new mum, ‘What to Expect the First Year ‘ by Heidi Murkoff was my bible for the first 12 months of Tom’s life.

Like every new mum, every  month I proudly ticked off Tom’s achievements– sitting, crawling, first solid food. Then I almost burst with pride.  Aged 10 months, he pulled himself up on the sofa and walked across the room!

But when I took him to the playground, I noticed that Tom ignored the other children. He  wasn’t interested in playing on the slides and swings. Instead, he spent his ‘playtime’ picking up handfuls of the gravel and watching it fall between his fingers.

I was a bit confused by Tom’s reaction and obsession with the gravel. I felt  sad for him that he was missing out. Over time I found the joy at seeing him engrossed in HIS form of play. It was an early lesson in letting go of MY expectations. Now I understand that playtime was always going to be a sensory experience for Tom. He always wanted to touch things and liked to know how things tasted or smelt. Even railings, but that’s another story!

I didn’t know it then but  letting go of expectations was to become my mantra.

 

Lesson 2: Live In The Moment 

Tom memorised in his water play

From an early age Tom was fascinated with water. As a toddler he loved to pour water into and out of small cups  or jugs for hours on end.

The joy of watching him completely absorbed in his water play, his curiosity for the  waters feel, look and movement taught me to live in the moment.

I realise now it was a sensory need for him. The  visual stimulation from the patterns made when the water dripped and poured into various containers made him feel happy and calm. 

 

 

 

 

Lesson 3: The World Is Loud And Bright

Tom having some quiet time with his favourite teddy

When Tom was a toddler, I often thought he had superhuman powers of hearing and seeing. He could hear a dog bark from miles away, get agitated  during loud conversations and react immediately to bright lights.

Yet…he didn’t seem to hear me calling his name.  These powers, far from helping him, seemed to cause him acute distress. He covered his ears and eyes with his hands, hid under tables and tried to run away. Anything to get from the noise and brightness. If he couldn’t get away, he would have a meltdown. 

I was confused and worried by his reactions.  I instinctively knew what would help him. He  needed his favourite Tellytubby, a cuddle and a quiet place to make him feel safe.

Since having Tom I’ve realised how loud, bright and intense the world can be. I know now that he sees, feels and hears things that I’d never paid much attention to much more intensely. This sensory overload was the reason for his meltdowns. Heck, maybe that’s why he walked at such an early age …so he could escape!

I’m now more aware of the sights and sounds around us. I’ve even noticed that the intensity of fluorescent lights in offices and shops often affects me .  During these moments of sensory overload I need to find a quiet place and take time to collect myself.

Lesson 4: Silence Can Speak Volumes

Reunited with Tom after retuning from hospital

When I came home from hospital after giving birth to Toms sister I expected a grand home coming. I was looking forward to an excited toddler giggling and rushing towards me arms outstretched, impatient for a cuddle.

Instead I was greeted with a silent hug . A seemingly underwhelming welcome.  I knew, however, from the way Tom hugged me, so tightly. The way he looked at me that he had missed me, that he loved me.

This was the start of my understanding that we didn’t need words to communicate. It was a good thing as he didn’t start to talk until he was nearly 5.

We’ve had a humongous amount of hugs since then!

 

 

Lesson 5: Never Take A Milestone For Granted

Biscuit time- Tom’s favourite part of the day!

Tom was nonverbal until almost 5 years old. 

When I was told by doctors that it was highly likely Tom may never speak. I was devastated. I could feel his frustration at not being able to tell us what he wanted. We had to find some way he could communicate with us.

Tom used to take me by the arm and pull me towards what ever he wanted.  For example, the fridge if he wanted a drink or the front door if he wanted to go outside.  We had to find a better way.

 We started using objects and picture cards. These gave him a way of showing us what he needed or wanted. He’d give me the drink card if he wanted a drink or show me the coat card if he wanted to go outside. Guess which card was always top of the pile!? The biscuit card!

It’s not the milestone we were expecting but we didn’t take his progress for granted.

 

 

Lesson 6: Celebrate Every Unique Moment

Tom playing with his sister Hannah

The arrival of Tom’s sister Hannah marked the start of Tom’s shut down period.

Most of us sadly, are all too familiar with a lockdown but Tom was ahead of the curve! Back in 2002, he went into his own self-imposed lockdown. Showing zero curiosity about his new baby sister, Hannah, other children, or visitors. He screamed when she cried. There was only one thing he wanted to do all day, every day. Lie on the floor and move a piece of a toy wooden train track up and down in front of his face.

It was heart-breaking to watch. I felt intensely sad. Tom was missing out on all the fun toddler things I had planned to do with him. I was also fearful. Worried  that Tom would forever resent his little sister.

One afternoon, without warning,  Tom abandoned his beloved train track (seen in the photo at the edge of the rug). He spontaneously started  to play with Hannah. Tears of joy streamed down my face. I knew that this was a unique moment to be celebrated.

From this small precious moment, the most incredible bond between the two of them has grown and developed over the years.

Lesson 7: Life Goes On

Some of the cards for Tom’s ABA programme

Receiving Tom’s diagnosis of autism just before he turned 4 came as a mixture of relief and sadness.

Relief as for almost 2 years I’d had a nagging feeling that something wasn’t quite right. Tom’s lack of speech, repetitive play and extreme reactions to any changes in his routine now made sense . However, I felt an equal measure of sadness. The future I imagined had been taken away. I felt isolated, overwhelmed, and missed having my family and friends on the doorstep.

But life goes on. I quickly became the CEO of Tom, Plc!

Soon after the diagnosis, we were offered a place on a home-based therapy programme – 40 hours a week of applied behavioural analysis therapy (ABA). A  2-year programme (the first of its kind in Switzerland) which took over my life. My weeks became a flurry of appointments, assessments, and the day-to-day management of the therapy sessions. Not to mention all the resources, the hundreds of picture cards I made to support the programme. 

I hit the ground running! Working as a therapist on the ABA team gave me a sense of purpose. It also  allowed me to adapt Tom’s  programme so it reflected the things that mattered to him. More TBA than ABA!

Lesson 8: The Power Of A Hug

A reassuring hug during a busy family party

Three months into Tom’s  ABA programme we flew to the UK to attend my mums 60th birthday party. A  gathering of over 70 family and friends in a local pub.

It would have been easy to opt out of going. My mum knew how challenging it was for Tom to be out of routine.  She would have understood if we had chosen to stay at home. But seeing family was important . My mum had survived breast cancer, so I really wanted to mark this landmark birthday with her.

The journey didn’t worry me as much as the party. We had made frequent visits to the UK since Tom was a baby. We  often joked he had been on a plane more times than a train or bus. My travelling preparation  was therefore honed to a tee particularly my ‘survival bag’. A handy assortment of books, toys and treats which went on all our travels. It could be deployed to help distract and calm Tom in situations he found stressful or overwhelming.

But,  it was often a simple hug,  which had the real power to calm, reassure and comfort him.

 

Lesson 9: The Importance of Perseverance

Tom working on his ‘l’ sounds in his speech therapy session

Tom made huge progress on his ABA programme. He started to speak and repeat phrases.

We were so excited to hear his voice.  When he randomly said ‘Nanny’s greenhouse’  we flew back to the UK as soon as we could. Delighted that he  could see Nanny and her greenhouse!

I’d have to wait a bit longer to hear him say ‘I love you mummy’. Tom had significant speech and language difficulties. He was unable to express his ideas and thoughts in complete sentences and had trouble pronouncing certain sounds. I admit I found the way he said ‘wamp’ for lamp charming.  However, other people found it difficult to understand him.

He started regular speech and language therapy which included work on his ‘l’ sounds both in the therapy session and lots of practice at home.

With hard work and perseverance, he finally mastered that tricky ‘l’ sound.

Lesson 10: The World Is a Beautiful Place

Tom in awe and wonder during a forest hike

Tom loves patterns. He is fascinated by lines, shapes and colours 〰🔴🔻🌈

When he was younger, he would often stop and stare at the shadows cast by railings. Fascinated by the shapes made by the lines. He’d be mesmerised looking at a crack in the pavement. Captivated by the glow of the setting sun and transfixed by a falling leaf, as shown in this photograph.

 Tom  taught me to take notice of all the little things that make our world so beautiful 🌍

 

 

 

 

Lesson 11: The Power of Sharing

 

Tom having fun at Pre-School

Like every mum dropping their child off for their first day of school, I felt the usual mix of emotions . Proud yet worried about how Tom would settle in.  Twelve   months earlier it seemed inconceivable that we would find anywhere suitable for Tom. It had been quite a journey to get him to this point.  Leaving him in the classroom was so emotional and overwhelming. I had to dash to the car for a cry. 

 I knew that it would not be possible for Tom to attend school fulltime. His communication difficulties, limited attention span and sensory issues. made full time attendance too challenging.  I didn’t want to set him up for failure. For him to feel defeated by education at the very offset.

 I wanted Tom to have the opportunity to learn alongside his peers. To  have the shared cultural experience of education. I wanted a flexible option – sharing his education between home and school.

We discounted local primary and special schools because they were German speaking. Tom was just learning to communicate in English, so this was a no-no.  The international school was our only option. Would they be prepared to share Tom’s education and allow him to have a mix of school and home-based learning?

We were lucky. They did.

Aged 4,  and a year older than his peers, Tom started at the Zurich International Preschool for 2 morning per week with an assistant. His ‘at home’ time was spent following his ABA program and with me. It gave him time to sort out some of things he found confusing at school and space to recharge.

This collage of pictures taken during Tom’s Preschool year shows just how happy he was at school.   Tom was able to enjoy a shared education for the next six years . We are forever grateful to the staff at ZIS  for their patience, respect and commitment to Tom’s flexi-schooling. 

Lesson 12: Making Sense of Senses

Tom in hospital waiting for an x-ray

En route to Cornwall for a summer holiday, Tom broke his arm. He fell off a climbing frame at a service station.

We didn’t realise he’d broken his arm – he didn’t scream, shout or make any fuss. He simply picked himself up and headed back to the car. It was only when we were back on the road that I noticed him clutching his elbow. His face drawn, ashen and etched with pain. We veered of the motorway to find the nearest A& E. This photograph was taken as we waited to be seen at the hospital. 

 The X-rays showed that it was nasty break. I felt terrible. He must have been in the most horrendous pain and we had been unaware of his suffering.

It was just so confusing. Haircuts, having his toenails cut, washing his face caused him to scream to high heavens.  Breaking his arm – not even a whimper.

We already knew that Tom had difficulties with his language and communication. This this couldn’t explain the lack of any emotion to his injury. Even without words, tears would have at least alerted us to his pain. I realised then that there must be major issues with how he was interpreting sensory information. This was having an impact on how he was behaving and responding. It just seemed so unfair for one little boy to have to deal with yet another set of difficulties. I felt defeated…

It was time for an occupational therapist to join team Tom!

Amongst other sensory issues, OT assessments showed that Tom was both overly and under sensitive to touch. His  behaviour and certain reactions started to make sense.Tom  had always disliked messy play but would be unaware of his hands and face being dirty. He loved being hugged by me but would recoil in horror if anyone else tried to touch him. He touched and mouthed objects but was fussy with his food and avoided certain textures.

So, aged 5, Tom started weekly sessions of OT at school and a programme of activities and exercises at home.  With patience, commitment, and hard work, Tom has steadily improved his ability to interpret sensory information from his body and the environment. Haircuts and nail cutting are no longer an issue though he still has a relatively high pain threshold and tolerance for being cold.

This experience with Tom also taught me the importance of providing a nonverbal way to communicate aches, pain (including broken limbs!) and sensory overload to others in a simple and effective way. That’s why we’re proud to include a ‘I can do it manage me feelings ‘ kit in the TomTag range. 

Lesson 13: Less Is More

As part of his occupational therapy programme Tom had a series of daily activities to practice at home. There were movement exercises to encourage the right and left side of his brain to talk better to each other. This interhemispheric integration would  improve how he could react to his surroundings. There were also lots of fine motor activities. Tasks to help improve the small muscles in his hands and wrists to help him with skills like, grasping, dressing ( zips & shoelaces) writing and drawing.

I was willing to work and put in the time with Tom but sometimes he wasn’t interested in the activities. On days like these it was easy to feel disheartened and resentful.

Short of bribing him with his favourite biscuits (!) I learnt that the secret to getting him to do his OT exercises regularly was to do a little often. It also helped to spread them out during the day and turn them into a game. It was also important not to take things personally. If Tom was stressed or agitated during the activities then we would leave it and start again the next day.

Lesson 14: Joyful Collaboration

 Tom’s ABA programme was a success. Now he could communicate what he wanted, concentrate much better and was behaving appropriately at school. But life isn’t just about getting your needs met and fitting in. It’s about connection and friendship. The joyful experience of sharing our ideas and feelings with another person.

How could we help Tom develop meaningful conversation, cooperation, flexible thinking and empathy. All  the skills he needed to make and keep a friend?

I discovered Relationship Development Intervention (RDI) by chance in a magazine article. This programme based on Developmental Psychology was the perfect fit. It’s  guiding principle is Joyful Collaboration. The  idea that joy comes not from a toy or game but from sharing an experience.

Tom moved from ABA onto RDI at the same time as receiving OT and SLT (got to love an acronym or two!). It was a full-time job coordinating all these programmes and collaborating (joyfully!) with various professionals.

For RDI, we practised different activities at home working on joint attention, collaboration, teamwork, and communication.

In this short video clip, Tom (aged 8) and I are sharing the job of watering flowers. We take turns with the watering can with the aim of helping Tom practise being a ‘team member’. Although he was reluctant to water the flowers, he accepted my instructions . I loved how the ‘job’ developed into a fun chasing game. A true Joyful Collaboration!

Lesson 15: Planning Is Key

Tom, happy and relaxed ready for his first day at school

When Tom was 10 years old, we relocated back to the UK from Switzerland.

For any family moving home can be stressful, moving to a new country -double the stress! I was worried about how Tom would manage this major change in his life.

 It was potentially a huge challenge for him. He craved familiarity, had built up excellent relationships with his various therapists and was thriving under his bespoke educational arrangement. How would he cope with a new home, attending school for a full day, wearing a school uniform for the first time?  

Tom coped.

The relocation went relatively smoothly because we planned and prepared for it. Creating  a picture book of the new house and school was a great help .We  focused on the positive aspects of the move such as being able to see more of his grandparents and cousins . We  encouraged him to share any worries he had about the move. He worked on a story about his mixed feelings about leaving Switzerland with an amazing counsellor at the international school.

Critically, we took his routines with us -his morning, bedtime, get-ready for school routines.  

He settled in remarkably well at the local mainstream village primary school. There was some regression in his language and behaviour. But, with the support of a sensitive and dedicated teacher and assistant Tom soon found his feet and voice.

I quickly formed a new Team Tom with a new speech and language therapist and occupational therapist.

Planning was therefore the key to making the relocation a success.  

Lesson 16:  The Importance of Special Interests

All things Eddie Stobart!

It was one of my biggest worries when we relocated back to the UK from Switzerland. How would Tom manage without his special interest. -Swiss transport.  He loved swiss trains . His favourite part of any journey was spotting lorries  from the Swiss firm Galliker.

 Fortunately, I had a secret weapon. Eddie Stobart – the iconic green delivery lorries that criss- cross the UK 24 hours a day.

I cunningly introduced Tom to Eddies and signed us up to the Eddie Stobart Spotters Club. We live near to the M62 – prime Eddie Stobart spotting territory! We could go out to eat as a local pub overlooked the motorway. The staff got to know us . They  always gave us a window seat where Tom would quietly sit, happily keeping a tally of all the lorries he spotted on the nearby motorway (using his Eddie Stobart writing pad and pencil!)

 Eddie Stobart lorries were a source of comfort and enjoyment for Tom. For us, they became a source of inspiration.  Birthday cakes, biscuits, and presents also assumed Eddie status.

More importantly, Eddie Stobart became a means of encouraging him to engage in his learning.  Art projects, tricky writing tasks and maths problem could all be given the Eddie treatment! Tom approached any task that had a hint of Eddie, with enthusiasm, happiness and a willingness to learn.

Tom’s love of Eddies lasted 3 years. The most memorable event was a tour of an Eddie Stobart depot and a chance to sit behind the wheel. I don’t know who was more excited – Tom or I!

Lesson 17: Fussy Eating Habits Can Change Over Time

Tom, aged 12 and his signature dish- cheese-less pizza!

When Tom was younger, he was a picky eater.

I knew that Tom needed a balanced diet – a variety of fresh, healthy food for good health and development. For the first few years, I felt guilty and responsible that he would only eat a limited amount of food.

 Tom’s diagnosis of autism and the results of his OT assessment helped me understand his fussy eating habits.

He needed familiarity and routine. Trying new experiences including eating new foods were therefore difficult. It was obvious now why he was preoccupied with certain foods. They  provided him with reassuring predictability. 

 Tom craved soft food like ice cream.  He liked the feeling of coldness in his mouth.  Bland foods like pasta, bread and chips  were his preferred choice.  He disliked meat  because he found chewing difficult. Though he did make an exception for chicken nuggets! He disliked tomatoes but liked ketchup or tomato sauce because he didn’t like the texture of tomatoes . His favourite meal was pizza but without any topping other than tomato sauce.

Sharing regular meals and snacks and introducing new foods gradually helped Tom get comfortable with new foods. However, the biggest change came when he was 15. He started a Jamie Oliver cooking course at school. By preparing and cooking food with the encouragement from two talented teachers, Tom’s food preferences changed. He was more willing to try different foods.

This Christmas aged 20, Tom enthusiastically dipped carrot sticks and chunks of olive bread into his baked camembert. His food choices have come a long way since this photograph was taken! 

Lesson 18: Detective Work

Tom happy and relaxed in the mountains

When Tom was younger it was difficult for me to know what his feelings meant. It was also difficult for him to pick up clues about how I was feeling.

Although Tom feels the same thing as everyone else, the nuances can be blurred. His feelings are much more intense and can be harder to distinguish. Feeling sadness could lead to him crying but also to laugh or shout for no good reason. He has difficulty interpreting gestures and expressions – often thinking I’m angry when I’m not!

With his SLT, we  created a book of feelings to help Tom understand his own and other people’s feelings. We used this book to teach him the words he needed to express and recognise different feelings.

This work made me look at my own feelings and emotions.  I had to understand what feelings mean to me before explaining them to Tom. We were both developing our feelings detective skills!

Helping him to identify the size of his feelings and relate this to his physical reaction was also important. Often,  a little feeling could grow into a gigantic feeling. Tom could spend hours, days, even weeks catastrophising.  Churning over thoughts and feelings in his mind like a sticky record.

Teaching and modelling simple self-help strategies like self-talk (phrases Tom could say to himself when he was feeling worried) helped. At secondary school he used  a sensory levels chart (a visual chart to recognise his sensory stressors)  to help him  to manage his feelings.

Our experience led to the development of the TomTag Feelings Notebook. A resource for other families to use to support their feelings and emotions detective work.

That’s a thumbs up from Tom!

Lesson 19: Look At Ability Not Disability

Tom with his award for effort and all ready for Prom

Like any parent I was anxious about Tom’s move to secondary school.  I had managed to keep him a year behind cohort, so he started at age 12 . However he was both academically and socially behind his peers and it felt like the gap between them was widening. Like a train picking up speed out of the station and you can’t get on it  no matter how fast you run.

It was unrealistic to expect any exam success – unless there was an exam in Swiss train timetables and routes! Tom gets anxious even at the mention of the word test.  Furthermore,  his language difficulties meant that he struggled to understand complex sentences, instructions and specific vocabulary.

Despite the anxieties and challenges he faced, Tom always worked hard and tried his best . He was the only young person at his school to consistently achieve straight A grades for attitude across all subjects. This exemplary attitude to learning was motivated by his need to please his teachers and not disappoint or upset anyone. Though,  he did enjoy many of his lessons. I felt so proud when he was regularly awarded prizes for effort at school prize giving.

Tom left school with few formal qualifications, but he left smiling, confident and with the motivation to continue learning. He even enjoyed Prom!

 

Lesson 20: Say What You Mean

Tom at home in the Etihad stadium

One of the biggest challenges for Tom due to his language difficulties is making sense of what people are saying.

When Tom’s grandad suggesting taking him for a spin in the car Tom looked horrified!

Before I had Tom, I didn’t think about the extent to which we play games and  hide behind words.  How often we use sayings like ‘Pull your socks up’, ‘we’ve run out of milk ‘,’Get a move on’ . Many of which are confusing for Tom because he takes what is said literally.

 When he was younger, I learnt to tell him exactly what I wanted him to do using as fewer words as possible. I helped him to learn how to look out for expressions on faces and realise the importance of how expressions are more important than the words themselves by emphasising my facial expressions and using exaggerated gestures . Some days I felt like a CBeebies presenter in full flow!

Tom can still become confused by words with similar or related meaning. Encouraging him to say when he hasn’t understood something and talking about some of the saying we use regularly and what they actually mean helps. His love of football is helping him experience playful teasing in a light heated way.  Some good old footy banter with people he trusts. Thankfully his team are doing well so he can banter from a position of strength!

Lesson 21: It takes a village.

Photo collage of memories

After 21 years living with autism, I have learnt that it really does take a village to raise a child.

My village is larger than most. My  family, friends, the dedicated therapists, teachers, teaching assistants and personal trainer we’ve been privileged to work with over the years . Plus, the many people we’ve met who have shown us the character of their humanity.  The hairdressers, barbers, dentists, shops assistants, waiters  who when faced with difference have responded with patience, empathy and decency.

Every victory we experience with Tom whether it’s trying a new food,  meeting new people or dealing with a change of plan belongs to us all.

Tom has taught me that it’s okay to ask for help. He’s taught me that just like any other child he needed me and our village to believe in him. His potential to learn, grow and thrive alongside his peers and community.

 

 

Thank you, Tom, for these lessons in what really matters.  I know you will continue to face the next 21 years with courage, determination and the enduring support of your village.

I’d love to know in the comments below what lessons you have learnt from your children.

                                                                                                                                          Clare ❤

Resources

 

  • cover image feelings notebook extra stickers

    Extra sticker sheets for Feelings Notebook

  • cover image sticker pack feelings & emotions

    Feelings & emotions

  • Feelings Bundle

  • cover image download feelings tag

    Feelings tag-o-meter

  • I Can Do It Manage My Feelings Kit

  • I Can Do It Share How I Feel Mini Kit

  • cover image product feelings notebook

    My TomTag Feelings Notebook

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Games for Children with Autism – 5 Fun TomTag Activities

Plastic tags showing examples of games for children with autism

Play is one of the main ways that children learn and develop. There’s no reason why children with autism who use visual supports are any different. So why not bring play and fun games for children with autism into your visual supports too. To them they’re playing games, but you know that they’re getting some occupational therapy, speech activities and thinking skills thrown in. Games may also help children with autism engage more readily with using their visual supports. It’s a win-win!!

Here’s some of our ideas you could use to help your child engage with TomTag. 

#1  Indoor I- Spy.

Colouful plastic tags showing examples of an indoor I-Spy gameStuck indoors? Why not encourage language and memory skills with a fun indoor I -Spy game.

Instructions:

🌈Ask you child to choose a colour tag and room in the house.

👀Can they look round that room and find, name or point to items that are the same colour?

✔Click a reward button into the tag for each item found.

😊Praise them for their effort and move onto another colour and room.

In the examples shown, we used stickers (rooms and stars) from our In the house sticker pack. We drew the other symbols onto blank stickers. 

#2 Outdoor I-Spy

Colourful plasticm tags showing examples for an outdoor I-Spy gameUse your daily walk to play  I- Spy and spot things you may see in your city, town or village using a personalised TomTag checklist.

TomTag is also super portable and robust – ideal for taking with you when you’re out and about!

Instructions:

🗨Ask your child to suggest things they are likely to see on their walk – perhaps they can guess what order they will spot them in!

✍Make up the checklist together – we’ve used stickers from our Out and About sticker pack but you can just as easily draw or write on some blank stickers.

👀 On your walk, encourage your child to spot the things, find it on their tag and turn the button over. This shows  they’ve seen that thing.

🧐Praise them for keeping their eyes open and being a good detective.  

#3 Feelings & Emotions Charades

Colourful plastic tags showing images of feelings and emotions Help your child understand, recognise and express their feelings and emotions with a simple game of charades.

No Oscar winning performances required!

Instructions:

💬Talk to your child about the feelings and emotions included in the game – choose ones that your child needs some help with.

🤏 Jumble up the feelings and emotions symbol buttons and ask your child to choose one for you.

😀Act out the feeling or emotion shown. Can they guess it? If so, pop it in the tag otherwise have another go.

🔁Swap places and ask your child to act out the feeling or emotion for you to guess.

We’ve used symbol stickers from our Feelings and Emotions sticker pack but you can easily draw or write on blank stickers.

#4 Categories and Pairs

Colourful ploastic tags showing examples ot items that belong togetherDevelop vocabulary with a game of categories or matching pairs

Instructions:

▶Categories

🤏Choose a category. For example, things to wear.

🧦Ask your child to find all the symbol buttons showing things that can be worn and click them into the tag.

🚿Repeat with a different category, e.g. things I need to do in a morning.

▶Pairs

🧼💧Ask your child to find the items that go together e.g. what do I need to clean my teeth or wash my hands?

We’ve used symbol stickers from our self-care sticker pack, but you can easily draw or write on blank stickers.

#5 Sequencing skills

Colourful plastic tags showing daily activity sequencesPractice sequencing skills with a simple game of “what happens next”.

This game can also help reinforce familiar daily routines so it’s a win-win for everyone!

Here’s how to play the TomTag way.

🤏Choose an activity sequence

🤔Jumble up the symbol buttons and ask your child to find the one they think they should come first, second etc.

✔Click them into the tag into that order and ask them to check it is correct.

🗣Call out an activity and ask them to find it in the tag and turn the button over to show they have completed the activity.

Depending on your child’s ability, you could take out a few of the steps and build up to the longer 6-step sequence. We’ve used symbol stickers from our two popular mini-kits: teeth brushing and morning and evening routine.      

                                                                                                                              

Do you have any tips for games you can play with your TomTag? Please let us know in the comments below.

Useful resources

  • cover image sticker pack out & about

    Out & about

  • cover image sticker pack feelings & emotions

    Feelings & emotions

  • cover image sticker pack self care

    Self care

  • cover image sticker pack blank stickers

    Blank stickers

  • Blank buttons – pack of 40

 

 

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Autism and anxiety in lockdown – sweating it out!

Exercise routine

This year’s World Autism Awareness Week takes place against the backdrop of a global pandemic. With a third of the global population under lockdown our daily lives have been dramatically changed. Forced to remain in our houses and adapt to new circumstances, many of us will be feeling bewildered, frustrated and anxious.

Sweating it out!

The anxiety many of us are now experiencing around these unprecedented changes gives us an insight into how many young people with autism, like my son Tom, experience an unwanted change of plan – it’s fraught with worry, it’s out of anything we could have predicted and it’s not what we wanted.

Our ‘new normal’ in these strange and unsettling times is very much how he feels all the time. Imagine having to deal with that level of anxiety every single day!

So, given everyone’s heightened levels of anxiety how can you manage autism and anxiety in a lockdown?

We’d like to share some daily strategies which we are using to support Tom’s mental health during this lockdown period. We’ve called it the SWEAT approach – let’s sweat this one out!

tips for good mental health
Daily SWEAT

Socialise – maintain social connections

Tom misses his dad, grandparents and college friends. Thankfully technology makes it relatively easy to keep connected. However, just as in normal social situations, we’re careful not to put demands on him to socialise virtually either.  We offer him a choice of how he stays connected and how often he wants to have contact.

Work – provide structure and routine

written timetable
Tom’s written weekly timetable

Routines and rituals help establish stability and order for children and young people with autism like Tom.

Like many young people with autism Tom struggles with flexible thinking. That means he finds it difficult to adjust and readjust to changes in his routine and this can cause him anxiety. A useful strategy has been to highlight what has stayed the same and what has changed. This reassures him that even with all the uncertainty some things, like his college work, mealtimes and bedtime routines, remain the same.

Keeping familiar routines going as much as possible is therefore important to provide structure and reassurance. Tom accesses his college work and sessions with his speech therapist, English tutor and German teacher online. A simple written visual schedule shows him what to expect each day and can help navigate these confusing times. You can also create symbol-based home visual schedules quickly and easily with TomTag.

However, it’s important not to set the bar to high! Be mindful that there will be days when the ‘home-schooling’ isn’t done and instead it is just a day of being together. An example of this was during the recent warm weather when we abandoned the schedule and went for a family walk.

Emotions – share worries and concerns

talking at table
Discussing concerns

Set aside time each day to talk about worries and concerns. Try to contain your own anxieties around the current situation because this anxiety gets transferred to our children. Now more than ever our autistic children need patience and support from the people they love.

Tom, like all of us, is naturally worried about events and this is amplified by worries about whether he is catching or spreading the disease.

We keep news coverage to a minimum and explain things in a clear and consistent manner using language appropriate to his level of understanding.

Making a wish list, where we write down all the things we want to do after the pandemic has passed, is also working well – though at the moment, it mostly revolves around football and Swiss trains!

Active – encourage physical activities

Keeping active is good for both our physical and mental well being. Tom has a daily fitness programme and he’s set up an exercise challenge with his speech therapist.

using exercise bike
Tom training hard!

Focusing on activities and encouraging him to do some chores – like washing the car and helping his sister deliver essential shopping to his self-isolating grandparents and other vulnerable members of the community – provides positive reinforcement that is so vital to keep up his self-esteem, confidence and sense of purpose.

Time alone – relax with special interests

reading book
Spending time alone

Build in lots of down time, together with time to indulge special interests. With all the family thrust together it’s important for mental well being that we all carve out some time for ourselves.

It’s a difficult time for all of us particularly for children with autism and anxiety. Hopefully by following these strategies we can sweat out this lockdown period.

What tips can you share that make this lockdown period more manageable and less stressful in your house?

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Home visual schedules for children with autism -TomTag tips

At the present time, we’re all facing unprecedented uncertainty. Now that schools are closed and we are stuck at home, families like ours are under a lot of stress. For children with autism, like Tom, this is a highly confusing and anxious time. Using a visual schedule at home will help to build a sense of consistency, predictability and security for him. In this blog we discuss the reasons why home visual schedules can help children with autism and how you can get started with using them.

Why should you use visual schedules at home?

Visual schedules at home can help you to communicate to your child when activities or events will happen throughout their day.

They use a sequence of drawings, symbols, text or pictures to show what a child is expected to do.

The more children can anticipate what is happening, the safer and more secure they will feel in these rapidly changing times.

Tips for creating home visual schedules

Here are some of our tips which we have taken from our Show me guide – visual timetables, Schedules and Routines.

We call it the TomTag 4 P’s approach!

Plan

Notebook and pencil for planning schedules
Planning is key

Depending on your child’s developmental age, sit down each evening and try and plan out a rough schedule for the next day. Decide which activities for the day or part of the day you want to show. Choose the length of the schedule that you think will be appropriate for your child and adjust as necessary.

A simple daily visual schedule could include some education, fun activities and chill time (for them and you!) to help give some meaning and purpose to the day. If you’re interested in creating or using educational resources have a look at Twinkl and Education.com.

Try to replicate some elements of your child’s typical day. For example, encourage them to get dressed, brush their teeth, eat breakfast, etc. You could use a mini schedule to target these specific skills by breaking down a single activity into smaller steps.

Symbols showing a bedtime routine
Example of an evening routine using Widgit symbols

Make sure the schedule includes things like bedtime, time for exercise and meals. You could also consider giving children a chore or job to do to help them feel useful. This could be as simple as clearing the table or putting away their clothes.

Setting aside time every day to do a family activity that you know helps everyone in times of stress is also important. This could be watching a movie or playing a game.

Worried about challenging behaviour?

Try starting with activities that your child usually does willingly. It makes sense to structure the day so that harder tasks are done first when children are likely to be more rested. After schoolwork or chores are complete you can follow with easier tasks as a reward for accomplishing the harder tasks.

Prepare

Boy playing with lego as shown on his visual schedule

A home visual timetable or schedule doesn’t have to be complicated– a simple written, maybe colour-coded, chart pinned on the wall so your children can see it and refer to it will do the trick. 

There’s lots of examples of visual schedules and timetables online to copy or download. For a quick and easy way to create home visual schedules our TomTag Primary Home toolkit or Early Years Home toolkit are great options.

Prompt

Most children will be used to seeing a visual timetable and prompts at school to show them what to expect during the day. Introduce a visual schedule at home using the following steps:

  • Cue your child with a brief verbal instruction when its time for an activity to begin e.g. “check your schedule”
  • Gently guide them to look at it or place it in their hands and prompt them to look at the next activity picture
  • Using the least amount of words, describe the activity e.g. get dressed
  • Help them do the activity or model how to do it.
  • Praise them for completing the activity
  • Cue them to check their schedule again so they can move smoothly onto the next activity.
  • Fade the prompts one your child learns how to follow the schedule

Patience

Keep prompting, praising and be patient!

It may take some time but it’s also important to acknowledge the pressure we’re all under. If the schedule goes pear-shaped, take a break and try again another time.

 

Helpful resources

Widgit Online offers a free 21 day trial that would be perfect for creating your own visual schedules for kids to use at home.

Five Minute Mum is a great blog offering lots of ideas for keeping children occupied during the day.

Recommended TomTag products

  • Early years

  • Early Years Home Toolkit

  • I Can Do It Learn At Home Kit

  • I Know What To Expect – Morning and Evening Mini Kit

  • I Know What To Expect At Home Kit

  • I Know What To Expect Early Years Kit

  • Learn at home

  • Primary Years Home Toolkit

Maybe you have a tip on how best to use visual schedules at home? Please get in touch or leave a comment below.

 

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Transition to secondary school for autistic children – 10 tips for smoothing the move

mum hugging boy in school uniform on secondary school offer day

“I’m feeling worried about eating in the canteen.”

“I am concerned that the lessons are going to be a long time.”

“I worry about wearing my blazer all day.”

These were some of the worries my autistic son Tom had when he was moving from his beloved small and familiar mainstream primary school to a much larger secondary school.

The move from primary to secondary school is one of the major transitions in a child’s life. All children are likely to feel some level of worry about this move but for many children on the autistic spectrum, who crave stability and predictability like Tom does, this transition can be particularly difficult.

Secondary school transition issues

Like many children with autism, Tom has anxiety about the unknown and finds it difficult to think flexibly. He felt safe and secure with familiar routines established in primary school. Not being able to predict what might happen in his new secondary school and the thought of dealing with change and different rules was a real worry to him.

As a parent, my worries were mainly around his lack of social understanding, his communication difficulties, and his sensory challenges.

How would he:

  • cope with the many new social situations he would encounter in secondary school?
  • manage his feelings and emotions when things didn’t go as planned?
  • deal with the increased sensory demands of his new environment? 

Preparation is key

Every child with autism is different so a ‘one size fits all’ approach to transition is therefore not going to work. It’s vital that transition planning should be personalised to each child. By preparing your child as much as possible beforehand using some of the tips we’ve listed below, we hope you’ll be able to make those first days and weeks in the new school a lot less worrying for you and your child.

Extracts from Tom’s transition to secondary school booklet
Extracts from Tom’s secondary school transition booklet

Top 10 transition tips

Tip #1

Arrange for your child to visit their new school several times before they start and at different times of the day e.g. lunchtime, breaktime and during lessons. Tom made frequent, short visits which helped make his new school more familiar to him and took away some of the worry he felt about eating his lunch in the canteen.

Tip #2

Make a “My School transition booklet” which your child can keep and use as they need in order to reduce anxiety.

Tom’s booklet included a map of the layout of the school, photographs of key staff (particularly the teaching assistants that were going to support him) and photographs taken of him in the important places, like the school canteen, main hall, classrooms and a safe place for times of stress.

A photograph of Tom on the stairs in the school corridor with his written note of the correct corridor etiquette

A photograph of Tom on the stairs in the school corridor with his written note of the correct corridor etiquette – “walk on the left hand side so we don’t get squashed and we can let other people pass” was a simple inclusion in the booklet but meant that he knew what was expected of him when the corridors filled with students.

Tip #3

Establish a link with a member of staff who can act as a mentor and home-school liaison. Set up a home-school book to pass on information about any worries/concerns or any relevant developments at home.

Tip #4

Create a personal profile written with the help of your child to include all the information new staff should know about them. Tom’s profile mentioned his need to have frequent movement breaks and his worry about the long lessons.

Tip #5

Get used to a homework routine in advance of the new school start. Start simply with a 10-15-minute task at a regular time each evening in a quiet environment.

Tip #6

Make a visual timetable showing the school day to make lesson order & break times more predictable. The TomTag School Timetable kit is ideal for creating portable and personalised timetables for your child without the hassle of printing, laminating or Velcro!

Tip #7

Practice the journey to and from school, making sure your child knows the location of bus stops, road-crossings, meeting points or anything else significant on their journey.

Tip #8

Familiarise your child with their new school uniform and deal with any irritating seams or labels. Tom practised wearing his blazer at home so that he got used to how it felt and was also told he could take it off during lessons.

Tip #9

Practice packing the correct items for school. The TomTag school bag packing checklist would be perfect for this!

Ask your child’s current primary school to work on preparing your child for the transition by including activities around organising and managing their own items at school.

Tip #10

TomTag feelings notebook with example page filled inSet aside time to discuss your child’s worries and concerns about the transition. Encourage them to write down or draw about any concerns they have about moving to their new school. Remind them of relaxation and self-help techniques they could use if they are anxious. The TomTag Feelings Notebook is a helpful place to record worries and concerns. 

Transition to secondary school resources

The National Autistic Society website has some useful information about transitioning to secondary school.

Leicestershire Autism Outreach Service also have a comprehensive transition resource pack that’s well worth checking out. 

  • Back To School Bundles

  • I Can Do It Pack My Bag For School Kit

  • I Know What To Expect At School Kit

  • cover image product feelings notebook

    My TomTag Feelings Notebook

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Making pancakes with children with autism

tomtag holders set up with instruction symbols for pancake recipe

Pancake day – it’s one of our favourite days of the year! 

Tom loves pancakes and helping to make them. With inspiration from this great visual recipe guide from Widgit Software we’ve set up TomTag with appropriate visual prompts so he can follow the recipe with me. There’s definitely no prompts needed for eating them!

 

First we get out all the equipment 

pancake equipment list on TomTag and items displayed

 

and then the ingredients 

 

pancake ingredients listed on TomTag and items displayed

 

 

 

Then it’s time to follow the recipe

 

pancake recipe

 

before choosing our favourite topping

 

pancake toppings choices listed on TomTag and items displayed

 

Have fun making your pancakes – I know we did, yum-yum!!

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Cooking – TomTag life skills

bread on grill tray being put into ovenBeing able to create quick and healthy hot meals becomes increasingly important as children get older and need to learn skills for independent or supported living. Following simple recipes provides opportunities to work on reading and listening skills, sequencing, nutrition, hygiene and learning to use kitchen tools.

The key thing to remember is to start with recipes that are simple enough to follow with limited assistance, building up slowly to add in more complex skills over time.

We’ve looked at preparing some non-cook simple meals for breakfast, snacks and lunches in our Simple Meals blog using symbols from our Food & Drink Basics pack.

With the additional symbols included in our Food & Drink Extended sticker pack, more confident or experienced learners can learn to prepare, cook and serve simple hot meals such as beans on toast, cheese on toast, hot sandwiches and egg recipes.  This sticker pack is available as a stand-alone item or included in the In the Kitchen and Independent Living kits.

Cooking – learning life skills with TomTag

washing hands under running water from tagHygiene

Don’t forget to use the opportunity to teach or reinforce rules about hygiene in the kitchen. We’ve included symbols for washing hands and wearing an apron but you could also use blank stickers to add reminders to wipe worktops or store food in the fridge, or use some of the symbols from our domestic chores Clean & Tidy pack.


tomtag shopping list with trolley and shopping bagPreparation

Show the images for the utensils and food that will be needed to create the recipe you have chosen and check you have everything listed before you begin.

You might also want to incorporate a shopping trip as part of your preparation to find all the ingredients you will need. The My Shopping List sticker pack and Help at the Shops kit would be useful here. For more shopping with TomTag tips, read our Shopping Life Skill blog.


tomtag with symbols for cutting food and preparing fruit Kitchen safety

There are lots of skills required in the kitchen besides dealing with the food itself. Knowing how to turn cookers and ovens on and off correctly, taking appropriate precautions with hot equipment, learning safe use of sharp knifes and other utensils are all essential skills to be learnt before a young person can be left to cook unsupervised.

Build on these skills gradually and move on to the next stage only when the individual is ready and capable of showing the necessary responsibility.


tin of heinz beans with toast, butter and 2 tomtags overlaid with symbols to make beans on toastChoosing recipes

Using a set of TomTag button holders and the symbols we’ve included in our Extended pack, you can quickly create step-by-step instructions for numerous simple recipes such as beans on toast, soup, sandwiches, eggs (scrambled, fried or boiled), cheese on toast and pasta with sauce.


tomas carving turkey at christmasServe it up

Be sure to give compliments and praise and encourage them to keep building on their skills. Let them be the first to taste what they’ve made and ask for suggestions of what they’d like to try next.

Serving and sharing meals with others offers opportunities for practising communication and social skills too.


 

Resources

Jamie Oliver’s Simple Cooking Skills website has a simple and visual layout and many of the recipes even include step-by-step photo illustrations.

Cooking with Autism also have a useful site with easy to follow recipes written in simple language.

Free to download from Widgit Symbols is this accessible symbol-supported recipe sheet for making pancakes

 

  • cover image sticker pack at the shops

    At the shops

  • cover image sticker pack clean & tidy

    Clean & tidy

  • cover image sticker pack food drink basics

    Food & drink basics

  • cover image sticker pack food and drink extended

    Food & drink extended

  • cover image download going shopping

    Going shopping

  • I Can Do It In The Kitchen Kit

  • I Can Do It Independent Living Kit

  • I Can Do It Learn At Home Kit

  • cover image sticker pack in the house

    In the house

  • Learn at home

  • cover image sticker pack my shopping list

    My shopping list

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Simple meals – TomTag Life Skills

I’ll never forget the first time Tom made his own jammy toast. Okay, so there was more jam on the kitchen worktop than the toast, but the pride I could see on his face made the cleaning up instantly forgettable.

And the ‘nomination for the life skill that has made the most positive difference to my life to date‘ goes to …. drum roll, please …. Tom making his own hot chocolate on school mornings! I gain a few precious moments to enjoy my breakfast cuppa whilst it’s still relatively hot!

It’s sad but true that man (or boy) cannot live on jammy toast and hot chocolate alone. However, learning to make simple meals, a favourite hot drink or snack is a great starting point for developing independent life skills for older children or young adults with autism.

Visual supports and guides make teaching these vital life skills so much easier and our TomTag Food and Drink Basics sticker pack is designed specifically to help with this task.

Here’s some of the ways we’d suggest for using this pack:

  • Step-by-step sequencing instructions for making breakfast, snacks, simple lunches or hot drinks. 
  • List the food choices available to your child for breakfast, lunch and snacks. 
  • List each family member’s food preference as a reminder to those preparing the food. 

Whichever way you choose, here’s a few simple tips to follow.

simple meals, choosing the right task, widgit symbol for cut with knifeChoosing the right tasks

Choose tasks that are appropriate to your child’s developmental level. Starter tasks might include washing fruit, cutting soft vegetables with plastic knives or spreading butter on toast (and work surfaces!).

Move on later to more complex tasks requiring greater motor skills, concentration and focus such as using a peeler, chopping with sharper knives or boiling a kettle.

 


simple meals, talking points, widgit symbol for snackTalking points, an opportunity for learning

Having children help make simple meals in the kitchen provides a natural opportunity for learning on a range of topics.

Teaching children to wash their hands and kitchen surfaces before preparing food or showing them safe ways to use knives helps them to understand the importance of kitchen safety and hygiene.

Practice reading and maths skills by comparing packet labels and counting or measuring out ingredients.

Talk about the effects our choice of food has on our health and lifestyle. Try out the NHS Change4Life Sugar Swaps app for a fun way to find out how much sugar is in our food and drinks.


simple meals, foodie fun, widgit symbol for fruit saladA recipe for foodie fun

Research shows that repeated exposure to food increases a child’s willingness to eat. On average, children might need over a dozen exposures to a food before ever putting it in their mouth, even more for a child with sensory issues around food.

Cooking meals therefore provides low pressure, fun, sensory experiences. If children associate food with enjoyable experiences, they’re more likely to be receptive to trying new foods and eating healthily. Involving children in meal choices and preparation of simple meals can help to improve their eating habits and establish a healthy relationship with food.

Cookie cutters are brilliant for turning boring sandwiches into enticing nibbles. A selection of different coloured fruits or vegetables look great laid out to make a rainbow.

This play-dough cafe we set up when Tom was younger was a really fun way to engage him with the experience of food preparation. Tom plays the role of both chef and waiter, helping to develop his communication and social skills too. 

Listen out for my most favourite comment of all from Tomas at the end “Please mummy, can we make our own food?”!


simple meals, praise, widgit symbol for washing upPraise, encouragement and letting go of the mess stress!

Be sure to give compliments, praise and lots of encouragement to your child to keep building on their skills. Let them be the first to taste what they’ve made and ask for suggestions of what they’d like to try next.

Having kids help out often means a bit more mess to clear up afterwards. Try to be patient and allow for a little extra mess whilst they’re still learning.
 


Resources for simple meals

Get free visual recipe sheets for tasty treats and snacks from The Autism helper.

Cheeriosmilkandspoon is Sarah’s personal blog account of parenting a child with food aversions and eating challenges.

  • cover image sticker pack food drink basics

    Food & drink basics

  • cover image sticker pack food and drink extended

    Food & drink extended

  • I Can Do It In The Kitchen Kit

  • I Can Do It Independent Living Kit

 

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Cooking skills for children with autism and sensory issues

text cooking skills for children with autism and sensory issues. 2 images of Tom preparing and cooking meals

Tom loves to cook and takes a keen interest in meal choice and preparation. We’re immensely proud that he achieved a Jamie Oliver BTEC Home Cooking Skills qualification with the help of two highly skilled and intuitive cooking teachers at school and lots of practice at home.

Learning cooking skills not only benefits a child’s health and well-being but also builds their confidence and independence and boosts life skills in other areas, such as maths, communication and social skills.

Tom has autism, sensory issues, and movement difficulties and finds following instructions tricky; a mixture of challenges that doesn’t naturally suggest a recipe for success in the kitchen! So what happened?

His success certainly didn’t happen overnight. He took many small steps over quite a length of time. We encouraged him through his special interests (like making lorry and number shaped biscuits) and took cues from him as to when he was ready to try new things. There was a lot of planning and preparation and a good-sized dollop of patience!

Are you anxious or worried that similar sensory or motor challenges will make it difficult for your child to help in the kitchen? Does the idea of cooking with your autistic child fill you with dread?!

Be prepared to give lots of physical or visual demonstration, plenty of practice and, above all, be patient. Manage sensory triggers and start with fun cooking activities that match your child’s level of interest and ability. We think you’ll be amazed at how much your child will be able to learn, how creative they can be and maybe even the new foods they might try! 

Sensory issues

Cooking skills, Tom cooking onions in a frying pan, steam coming off, wiping head. Text overlay "frying onions - an intense sensory experience!"Cooking creates a lot of strong sensory experiences like noise, smells and mess that will affect children in different ways.

For sensory defensive children (like Tom), certain textures, smells and tastes when handling and preparing food can trigger a negative reaction. Other children who are sensory seekers are more likely to be distracted by trying to satisfy their sensory needs e.g. chewing or constantly wiping their hands. This lack of awareness can be dangerous when working in a kitchen.

It’s therefore crucial to identify your child’s triggers before inviting them into the kitchen and think about appropriate adjustments you can make in order to avoid meltdowns or bad associations with cooking in the future.

Tips to alleviate sensory issues in the kitchen

  • Keeping a record of your child’s reactions to sensations will help you prepare dishes that do not include any of these triggers. You can use a simple diary or notebook (like our TomTag Feelings Notebook) to jot down your child’s sensory triggers as well as record your child’s culinary successes.
  • Arranging food or utensils is a mess-free food activity for children who love order but aren’t ready for touching food. Let them collect and organise the ingredients, line muffin tins or set the table.
  • Exposing a younger child to play situations with various textures like magic sand, slime or play-dough can help to desensitize them to food-type textures.
  • Try using thin non-latex medical gloves to avoid skin touching food directly.
  • Onion goggles (they really are a thing!) can protect eyes from the chemicals that make our eyes water. A normal pair of swimming goggles would probably work just as well!
  • Consider the utensils you use if your child is sensitive to sound e.g. replace metal mixing bowls and spoons with wooden or plastic.
  • Offer a long spoon to create a greater distance if your child has food phobias.
  • Provide access to sensory props like chewing aids or textured towels so that your child’s sensory needs are supported and managed in a controlled manner.

Motor challenges

cooking skills, banana being cut with a knife on a chopping board. Text reads "Cooking tasks exercise a wide range of gross and fine motor skillsTom found holding knives and other utensils difficult as the small muscles in his hands didn’t always do what he wanted them to do. He also lacked strength and coordination in his arms which affected his ability to cut, chop, peel or grate. Applying the appropriate pressure for different activities (such as slicing bread as opposed to a banana) was also an issue.

Tips to support children with motor challenges in the kitchen

  • Getting the right utensils can make a huge difference. Try supersized cookie cutters to compensate for clumsy fingers or look for child-friendly kitchen knives – we love the look of this simple Ikea set.
  • Practice fine motor skills by tearing herbs and lettuce or rubbing butter and flour into a breadcrumb texture (using the ‘rubbing in’ technique for making pastry and crumbles).
  • For cutting practice, start with easy to cut food that your child likes to eat. Soft fruit and cooked soft vegetables such as strawberries, banana, potatoes and carrots are ideal.
  • There are lots of activities around cooking that involve using different muscles. Mixing is a relatively safe and fun activity. Try pancake batter, dressings or sauces and for added fun you can even try shaking them in a jar!

Following instructions

cooking skills, young girl stirring baking mixture with wooden spoon. Text reads "start with the basics"Children learn best by example and in small steps. 

Start by teaching the basic techniques such as cutting and mixing before moving onto the bigger tasks like following a recipe.
Stand next to your child and ask them to copy you step by step. Hand over hand support can help with movement and pressure issues.

Having a relaxed and fun atmosphere is the best way to teach new kitchen skills. Find a time to cook when everyone is happy and calm. Tackling cooking when you’re trying to get dinner on the table or your child is hungry will only lead to frustration and tears – yours and theirs!

Resources for cooking skills

Deborah French is a mother of four children, including 2 with special needs. Deborah’s wonderful book The Cookbook for Children with Special Needs introduces children to the fundamentals of food preparation, healthy eating and cookery skills.

In this interview with the BBC good food guide, Deborah talks about her experiences as a mother, cook and writer and her remarkable journey from parenting two children with special needs to becoming an author of multiple books.  

To find out more about using visual prompts like TomTag to help your child build confidence and develop their cooking skills, follow the link to our next blog Simple Meals – TomTag Life Skills.

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Finding your brave – Children’s Mental Health Week

Day 5: What does ‘finding your brave’ mean for a child with autism?

What does ‘finding your brave’ mean for YOUR child? We hope you’ve found some useful advice in our series this week to help you answer that question and support your child and their mental health.

Here’s a summary with links to each of the blogs in this series :

  1. Explain to your child what bravery means and how it relates to their life and their personal challenges – What is bravery?
  2. Turn detective and get a deeper understanding of your child’s fears, worries and anxieties and the thoughts that are holding them back – What are you scared of?
  3. Choose some support tools and create strategies to help reduce uncertainties, learn social skills and aid communication – Overcoming fears – getting closer to brave
  4. Acknowledge and celebrate your child’s bravery in all its forms to boost their self-esteem, confidence and mental health – How does being brave make us feel?

Would you like a bit of help to get started?

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Click the button above to sign up now and we’ll email you our bravery boosters bundle!

You’ll receive a guide to developing good emotional intelligence that you can download and print, a video guide to using a feelings diary and a discount code to use when you purchase any Feelings and Emotional support products. A selection of these products have been featured in our ‘finding your brave’ series. 

  • cover image feelings notebook extra stickers

    Extra sticker sheets for Feelings Notebook

  • cover image sticker pack feelings & emotions

    Feelings & emotions

  • Feelings Bundle

  • cover image download feelings tag

    Feelings tag-o-meter

  • I Can Do It Manage My Feelings Kit

  • I Can Do It Share How I Feel Mini Kit

  • cover image product feelings notebook

    My TomTag Feelings Notebook